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  1. Kalliope

    Swedish Central Ethics Review Board finds Macchiarini guilty of misconduct, requests retraction of 6

    Swedish media reports that the whistle blowers in the Macchiarini case are now seeking compensation. The so-called whistleblowers in the Macchiarini scandal at Karolinska Institutet are now demanding compensation from the state. These are the researchers who alerted that the surgeon Paolo...
  2. Kalliope

    Death Studies: Risk factors for suicide in chronic fatigue syndrome - 2020 - Johnson, Jason et al

    Risk factors for suicide in chronic fatigue syndrome Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) includes symptoms such as post-exertional malaise, unrefreshing sleep, and cognitive impairments. Several studies suggest these patients have an increased risk of suicidal ideation...
  3. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    My apologies! This is already discussed here: https://www.s4me.info/threads/independent-advisory-group-for-the-full-update-of-the-cochrane-review-on-exercise-therapy-and-me-cfs-2020-led-by-hilda-bastian.13645/page-11#post-262491 I saw it on Facebook today and thought it would be news on this...
  4. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub8/information#whatsNew Date Event Description 21 May 2020 Amended Addition of the following text to the beginning of the Abstract, 'A statement from the Editor in Chief about this review and its planned update is...
  5. Kalliope

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    There's an update from May 21st 2020 https://www.cochrane.org/CD003200/DEPRESSN_exercise-treatment-adults-chronic-fatigue-syndrome
  6. Kalliope

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    I'm sceptical when they start selling before providing documentation regarding effect, but nothing would be better than if it really turns out to be helpful for some. Just show us some evidence before asking for money, please.
  7. Kalliope

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    More information from 17th Jan 2020 from CORDIS (The Community and Research and Development Information Service), the European Commission's primary source of results from the projects funded by the EU's framework programmes for research and innovation. Evidence-based probiotic for Chronic...
  8. Kalliope

    Probiotics for ME/CFS and IBS, Julin et al, Stora Sköndal (Sweden)

    GutMagnific on Facebook today (auto translation): Now we start a clinical study to investigate the effect of GutMagnific ® at ME / CFS (myalgic encephalomyelitis / chronic fatigue syndrome) in collaboration with Stora Sköndal's ME / CFS clinic. During the current Coronapandemic, we carry out...
  9. Kalliope

    News from Scandinavia

    Good opinion piece in a medical newspaper by Sigmund Olafsen, PhD - adviser for master degrees in acoustics and public health. Lack of data is probably an important reason for lack of objectivity in the ME debate. Another challenge is that studies of cognitive techniques have used, in part...
  10. Kalliope

    Low-dose Naltrexone articles and experiences

    Thank you. This was interesting! Good to know. Thanks! I'm sorry it didn't work for you though. Thanks @andypants Interesting to hear your LDN journey. Glad to hear your pension got approved and that you're a bit stable at the moment. Good luck with your other health related projects! Thank...
  11. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    There's a nice picture of David Tuller on the front page of the online version of Dagbladet right now. What a pleasure to see! https://www.dagbladet.no His signature is linked, but it's an email address to Dagbladet. Weird..
  12. Kalliope

    ‘Help Holger now’ video about a Swedish man with very severe ME

    A devastating story, and an all too familiar one :cry: The local newspaper Skillingaryd has an article about Holger's family's plea for help. A demonstration was held today with 45 relatives, friends and other supporters of the family. - We need urgent help for Holger to continue to live. We...
  13. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The response from @dave30th to Dagbladet is now online as well :) https://www.dagbladet.no/kultur/misvisende-om-me-studie/72537621 English version: Trial By Error: Two Letters to Dagbladet About Its ME Coverage
  14. Kalliope

    Low-dose Naltrexone articles and experiences

    Interesting! Glad it's been useful to you! Thanks. I looked at old threads on the topic before starting this, but think I missed that one. Will have a read :-) Yes, giving it at least a month sounds like a good idea. I've seen some recommending 6 months, but I don't know if I'm willing to try...
  15. Kalliope

    Low-dose Naltrexone articles and experiences

    I am sorry to hear that @Badpack So wish there will arrive better options for us soon! That sounds horrible. And you started so carefully, too. Thank you for sharing that @obeat It's definitely not for everyone, I understand. Hope you soon went back to your normal again when you stopped...
  16. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    David Tuller's letter to Dagbladet has finally been published in the paper version today :-)
  17. Kalliope

    Low-dose Naltrexone articles and experiences

    How convenient with a pharmacist friend. I'm sorry it wasn't helpful for you, though.
  18. Kalliope

    Low-dose Naltrexone articles and experiences

    Thanks, @InitialConditions I'll have a closer look at that facebook group May I ask for how long you were on it? And if you decide to try again, for how long you think is sufficient before concluding whether it's helpful for you or not? Interesting that your impression is that positive...
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