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  1. Kalliope

    Low-dose Naltrexone articles and experiences

    I hope 0.5mg in the beginning will go well, but great to have a backup plan. Thank you! I had not. Looks very useful. Thanks!
  2. Kalliope

    Low-dose Naltrexone articles and experiences

    Merged thread Low-Dose Naltrexone (LDN) - What's your experience? any advice? I've been sitting on the fence regarding LDN for a long time, but the brain fog is getting (even) worse and even a small improvement would have meant a lot for a higher quality of life. I brought Miriam Tucker's...
  3. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Thank you so much, @Joan Crawford ! You've provided important information and also shown Dagbladet that there are health professionals standing together with ME patients. The reality may not be quite as Dagbladet portrayed it in their recent articles after all.
  4. Kalliope

    News from Scandinavia

    According to the Podcast's website it's also available in iTunes, CastBox and Acast besides Spotify. But I think for now the episode has only been released on Spotify. It's in Norwegian only, I'm afraid..
  5. Kalliope

    News from Scandinavia

    Prof. Ola D. Saugstad has been a guest in a podcast about parenting. The result is a good and informative podcast episode on ME. He talked about what ME is, its symptoms and about PEM. He went briefly thought the history, different definitions of ME and how that can lead to different research...
  6. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Dagbladet has now fixed the misspellings of Berkeley. Now if they could just fix the other inaccuracies in the article.. Tuller er ifølge California University, Berkeleys, nettsider en «senior fellow» innenfor fagområdene folkehelse og journalistikk ved UC Berkeley´s Center for Global Public...
  7. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    They've now got Berkeley right once in the sentence: Tuller er ifølge California University, Berkeleys, nettsider en «senior fellow» innenfor fagområdene folkehelse og journalistikk ved UC Berkely´s Center for Global Public Health.
  8. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I just sent this letter to the Dagbladet editor who had written to me: Dear Hilde-- I see that the Dagladet article's reference to me now includes my academic affiliation. Unfortunately, the name of my university is misspelled. It is not "Berkely" but "Berkeley." I wondered if perhaps the...
  9. Kalliope

    New Video: The Lost Decades

    Amazing how much info you are able to communicate in your videos @Adam pwme A summary of the whole ME saga in seven minutes is quite a deed!
  10. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    As for now, there's no indication that the article has had any updates since it first got published 16th of May.
  11. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    It's not spelled differently and they even misspelled it twice.. It's a well known university here, and the Crown Prince of Norway is listed among Berkeley's Notable Alumni (1999).
  12. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    ETA: He shares links to other articles too
  13. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    A sentence about @dave30th has now been added to the article (my bold). NAFKAM-direktør Jong forteller til Dagbladet at grunnlaget deres for ikke å ta hensyn til LP-studien fra 2018, er at studien har vært kritisert av et tjuetalls forskere. Som bevis for dette, viser hun til et innlegg på den...
  14. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Dear Joan Crawford and Dionne Joseph. Thank you SO much for this. It means the world when also professionals are speaking up to show that this is not a conflict between ME patients and health care workers. Your letter was splendid and is much appreciated!
  15. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Agree. It's as if they believe that it's people who are sceptical of LP that are responsible for it not working for everyone.
  16. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Dagbladet has published an opinion piece from Recovery Norge in support of the LP study. We believe it is worrying that individuals and organizations are trying to stop and influence research and that researchers who are not perceived to contribute to a "right view" are being worked against. ME...
  17. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The editor from Dagbladet writes: But of course, we fully understand that your academic background is relevant regarding this topic, so we have updated the key information about your academic credentials. But as for now, there doesn't seem to have been any changes/updates of the article. Here...
  18. Kalliope

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Tuller finally received a response from Dagbladet, and sent quite some reply! Trial by Error: A response from Dagbladet Your reporter and your news organization appear to have launched this project with a built-in bias. The decision to present such a one-sided portrait of the dispute represents...
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