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  1. Sly Saint

    Perrin Technique

    Lipedema Simplified 2023 Virtual Community Event Adds Dr. Raymond Perrin As Keynote Speaker Lipedema Simplified 2023 Virtual Community Event Adds Dr. Raymond Perrin As Keynote Speaker | MENAFN.COM
  2. Sly Saint

    Survey: "TREAT ME" (ME/CFS & Long Covid Treatment Survey), by 'LongCovidPharmD'

    Merged New Approaches to Understanding and Treating Long Covid and ME/CFS (expresshealthcaremgmt.com)
  3. Sly Saint

    Statnews - Meghan O’Rourke on a medical system not built for chronic illness — and the ‘invisible kingdom’ that could spur change

    https://www.statnews.com/2023/10/23/chronic-illness-meghan-orourke-reforming-medical-system/
  4. Sly Saint

    Is the road to burnout paved with perfectionism? The prevalence of obsessive-compulsive personality disorder in... female patients.., 2023, Reinhardt

    Journal of Clinical Pyschology Is the road to burnout paved with perfectionism? The prevalence of obsessive-compulsive personality disorder in a clinical longitudinal sample of female patients with stress-related exhaustion 22 October 2023 Abstract Objectives Few studies have investigated...
  5. Sly Saint

    News from Aotearoa/New Zealand and the Pacific Islands

    MECFS Canterbury Financial Assistance from Work and Income when we are chronically ill
  6. Sly Saint

    UK: Sheffield Children’s Hospital, NHS, CFS/ME clinic

    (This is the adults service) Sheffield Health and Social Care Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) Service Information for our service users South Yorkshire and North Derbyshire what the actual 'treatment' is is very vague...
  7. Sly Saint

    Poor Reliability between Cochrane Reviewers & Blinded External Reviewers When Applying the Cochrane Risk of Bias Tool in Physical Therapy Trials,2014

    depends on the relevance of this line "Authors of updates will not be required to switch to the new tool." so I'm guessing for a lot of the 'current'/'live' reviews it (ROB2) hasn't been used. Really they should repeat the process in this paper to see if it holds up tho.
  8. Sly Saint

    Poor Reliability between Cochrane Reviewers & Blinded External Reviewers When Applying the Cochrane Risk of Bias Tool in Physical Therapy Trials,2014

    Abstract Objectives To test the inter-rater reliability of the RoB tool applied to Physical Therapy (PT) trials by comparing ratings from Cochrane review authors with those of blinded external reviewers. Methods Randomized controlled trials (RCTs) in PT were identified by searching the Cochrane...
  9. Sly Saint

    Long COVID research risks losing momentum – we need a moonshot

    that photo was from this one "In 2022, we protested in front of the White House calling for the Biden administration to address the crisis of M.E." You mean like using an ME protest photo and not even mentioning ME? I'm all for 'solidarity' with the LC community/cause, but it should work both...
  10. Sly Saint

    A Multimodal Ayurveda and Mind–Body Therapeutic Intervention for ... Postinfectious Syndrome: A Pilot Study, 2023, Shere-Wolfe et al

    https://www.researchgate.net/publication/374769636_A_Multimodal_Ayurveda_and_Mind-Body_Therapeutic_Intervention_for_Chronic_Symptoms_Attributed_to_a_Postinfectious_Syndrome_A_Pilot_Study Abstract Objective: Evaluate feasibility and impact of a multimodal integrative therapeutic intervention in...
  11. Sly Saint

    United Kingdom: Oxford Health NHS Foundation Trust; Oxford University Hospitals ME/CFS service

    job ad: https://www.simplyhired.co.uk/job/gTOlMJ7X_mGAsTtrkvyb2Q6vYMCihopZq_TnYozasf9MfV4r8aA6Og
  12. Sly Saint

    News from Aotearoa/New Zealand and the Pacific Islands

    Fatigue study uses population data https://www.odt.co.nz/the-star/fatigue-study-uses-population-data
  13. Sly Saint

    Long COVID research risks losing momentum – we need a moonshot

    except the photo caption says "Protesters outside the White House in Washington DC demand action on Long Covid", when it's a #millionsmissing protest and the banners are all about ME!
  14. Sly Saint

    Case Report: Rapid and partially persistent, improvements of anorexia nervosa and probable ME/CFS upon metreleptin treatment, 2023, Antel et al

    Case Report: Rapid and partially persistent, improvements of anorexia nervosa and probable myalgic encephalo-myelitis/chronic fatigue syndrome upon metreleptin treatment during two dosing episodes Jochen Antel1* Johannes Hebebrand1 Linda Von Piechowski2 Cordula Kiewert1 Burkhard Stüve3...
  15. Sly Saint

    The dangers lurking in Ayurveda – why the holistic therapy is doing more harm than good

    (Telegraph article from 5 months ago) The dangers lurking in Ayurveda – why the holistic therapy is doing more harm than good (msn.com)
  16. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Serco wins £350m DWP contract for disability benefits assessments Serco wins £350m DWP contract for disability benefits assessments (msn.com)
  17. Sly Saint

    Balance-ACT Study - Chalder

    I only found this info from a job ad: https://www.kcl.ac.uk/jobs/075605-acceptance-and-commitment-therapist eta: another ad, slightly different description Place as Acceptance and Dedication Therapist at KINGS COLLEGE LONDON Place as Acceptance and Dedication Therapist at KINGS COLLEGE...
  18. Sly Saint

    New developments in understanding chronic illness, Nov. 8-10 Washington DC Davis/Hanson

    Merged thread https://chronicillnessconference.com/about/
  19. Sly Saint

    Clinical partners website

    Dr Sheethal Rajashanker Consultant Psychiatrist Adult MBBS, MRCPsych Manchester (not full list) Treat? How exactly. https://www.clinical-partners.co.uk/clinicians/profiles/sheethal-rajashanker
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