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  1. Sly Saint

    USA: News from #MEAction

    Mayo Clinic Proceedings is a journal, not the actual clinic. https://www.mayoclinicproceedings.org/ Mayo Clinic have changed but it has been a long slog; some of their 'old' misinformation is still being used elsewhere. https://www.s4me.info/threads/usa-mayo-clinic.1207/
  2. Sly Saint

    Encyclopedia Britannica website: entry on CFS

    Although the history says they updated link to Mayo I can't find it and all the above info is the same even tho the site has been updated this month. So I've no idea where they got their info from now. There is a 'feedback' button if anyone wants to comment/ ask...
  3. Sly Saint

    Physio-pedia

    I don't know if this has been updated but does seem to contain even more good info. (I haven't looked thro in detail). https://www.physio-pedia.com/Myalgic_Encephalomyelitis_or_Chronic_Fatigue_Syndrome
  4. Sly Saint

    Psychiatry: An evidence-based text (textbook)

    first published in 2009. Would be interesting to know what these chapters contain. https://www.taylorfrancis.com/books/mono/10.1201/b13480/psychiatry-evidence-based-text-bassant-puri-ian-treasaden?refId=07ff00ce-a1ee-4394-a0b9-140cd9b6e785&context=ubx
  5. Sly Saint

    Predicting Myalgic Encephalomyelitis/Chronic Fatigue Syndrome from Early Symptoms of COVID-19 Infection , 2023, Hua et al

    Abstract It is still unclear why certain individuals after viral infections continue to have severe symptoms. We investigated if predicting myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) development after contracting COVID-19 is possible by analyzing symptoms from the first two...
  6. Sly Saint

    Review A Scoping Review of Pacing for Management of [ME/CFS]: Lessons Learned for the Long COVID Pandemic, 2023, Sanal-Hayes et al

    published https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-023-04587-5
  7. Sly Saint

    News from Scandinavia

    this is posted on #millionsmissing norway; can't see the page so have no idea which particular 'event' it is referring to as it could be several! eta: found it, it's from this...
  8. Sly Saint

    MDVIP : New Study Suggests Chronic Fatigue Syndrome Is Not in Your Head; It's in Your Gut

    MDVIP sent this email to their subscribers on October 10, 2023. https://deal.town/mdvip/how-your-gut-can-cause-fatigue-PKLST4PYE
  9. Sly Saint

    25% M.E. Group

    https://maldon.nub.news/news/local-news/motown-evening-at-maldon-town-hall-raises-ps830-for-me-charity-207223 NHS site definition of ME/CFS , 'extreme tiredness' again belittling seriousness of illness.
  10. Sly Saint

    A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies for the Management of (ME/CFS), 2023, Keferstein

    A Systematic Analysis of the Effectiveness of Mitochondrial-Based Therapies for the Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Abstract Background: This study aimed to compile and analyze an assortment of research findings concerning potential therapeutic...
  11. Sly Saint

    The hidden pandemic: a qualitative study on how middle-aged women make sense of managing their long COVID symptoms, 2023, Collier & Garip

    ABSTRACT Background: A relapsing and remitting illness, long COVID can be challenging and debilitating. A person living with long COVID can feel like they are getting better and recovering only to relapse again. The aim of the research was to explore how non-hospitalized middle-aged women who...
  12. Sly Saint

    News from the USA, United States of America

    short news item on News4JAX Are you suffering from fibromyalgia or chronic fatigue? not helpful at all.
  13. Sly Saint

    USA: Cornell Center for Enervating NeuroImmune Disease and Maureen Hanson

    Friday October 20, 2023 UMass https://www.umass.edu/natural-sciences/events/enigma-post-viral-illnesses
  14. Sly Saint

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    NHS Talking Therapies-Sham Monitoring http://www.cbtwatch.com/nhs-talking-therapies-sham-monitoring/
  15. Sly Saint

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    The longer the main NHS site has this "Myalgic encephalomyelitis, also called chronic fatigue syndrome or ME/CFS, is a long-term condition with a wide range of symptoms. The most common symptom is extreme tiredness." as its opening line, with no mention of PEM or emphasis/clarification that...
  16. Sly Saint

    Covid is evolving – but the UK is not doing enough to evolve with it - Professor Sheena Cruickshank, October 2023

    https://www.theguardian.com/commentisfree/2023/oct/07/covid-19-uk-variants-testing-monitoring-drugs
  17. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    it's more this line that got me "Jeremy Hunt has suggested people unable to work due to medical conditions or disabilities should be offered treatment so they can return to work" begs the question why they aren't they being offered treatment anyway, and if they have, then clearly the...
  18. Sly Saint

    UK Government ME/CFS Delivery Plan consultation

    dont know if this has been posted #MEAction Scotlands response https://www.meaction.net/2023/10/04/meaction-scotlands-response-to-my-full-reality-the-interim-delivery-plan-on-me-cfs/
  19. Sly Saint

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Mentally ill people could be given treatment to stay in work before benefits are paid says Hunt don't know whether to laugh or cry. https://inews.co.uk/news/politics/mentally-ill-people-treatment-stay-work-benefits-paid-jeremy-hunt-2656199 (if you have reader view you can read the whole...
  20. Sly Saint

    Inhalation of ACE2 as a therapeutic target on sex-bias differences in SARS-CoV-2 infection and variant of concern, 2023

    article Men at greater risk of severe Covid - and now experts may know why Men at greater risk of severe Covid - and now experts may know why (msn.com)
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