another CFS recovery group;
Australian (?) CFS Health
https://www.cfshealth.com/home
https://www.cfshealth.com/meettheteam
I found them thro this video on Youtube about GET; says the problem is people aren't doing it correctly and need to find the right baseline.
First ever diagnostic test for chronic fatigue syndrome sparks hope - Advanced Science News
https://www.advancedsciencenews.com/first-ever-diagnostic-test-for-chronic-fatigue-syndrome-sparks-hope/
we've heard that before tho, more than once.
any further feedback from BACME?
https://www.s4me.info/threads/petition-s4me-2023-cochrane-withdraw-the-harmful-2019-exercise-therapy-for-cfs-review.35109/page-4#post-494524
Abstract
SARS-CoV-2 mRNA vaccination can entail chronic fatigue/dis-autonomy tentatively termed post-acute COVID-19 vaccination syndrome (PACVS). We explored receptor autoantibodies and interleukin-6 (IL-6) as somatic correlates of PACVS.
Blood markers determined before and six months after...
Note deadline for this is this Wednesday 4th October.
(The online survey asks for which country you are from.....does this mean anyone from anywhere can do it?)
You don't have to give them any ID or email address if you don't want to.
Each of the sections has this:
The 4 multiple choice 'optional' tick answers are the same throughout and I found myself ticking all of the first 3 at least for most answers:
they then allow you up to 250 words to give...
The physio woman from the Bath clinic says that referrals are dropping and currently they are getting about 30% of what they were 12 months ago. There might several reasons for this.
But also it is at odds with what the BMJ paper by doctors says; (ie that they can't get referrals for LC...
just a point on the 'misconceptions' , comments made by people section (don't know if that is what it's called on the main doc, i havent checked), word limit is 30........ridiculous.
could mods put the main link to the consultation (ie https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan) at the top of the thread or whatever so that you don't have to trawl through the posts to find it.
Done
Didn't know where to put this.
It's a firm of lawyers based in Brighton , Sussex
Chronic Fatigue Syndrome, ME and Long COVID in the Workplace – What Should Employers Be Doing?
full info Chronic Fatigue Syndrome, ME and Long COVID in the Workplace – What Should Employers Be Doing? | martin...
Violation of the Dutch Code of Ethics for Psychologists with current CFS guideline – -part 2
Violation of the Dutch Code of Ethics for Psychologists with current CFS guideline – -part 2 – The ME Global Chronicle (wordpress.com)
Merged thread
#millionsmissing France demo today
Rendons visible l’encéphalomyélite myalgique à Rennes ! Place de la Mairie Urrugne, 30 septembre 2023 14:30, Urrugne.
https://www.unidivers.fr/event/urrugne-place-de-la-mairie-2023-09-30/
https://millionsmissing.fr/
Merged thread
Suffering from myalgic encephalomyelitis, Laëtitia experiences “hell” in her “centenarian body”
https://time.news/suffering-from-myalgic-encephalomyelitis-laetitia-experiences-hell-in-her-centenarian-body/
Autistic people have higher rates of chronic physical health conditions across the whole body and are more likely to have complex health needs, according to a study led by researchers at the University of Cambridge. Their findings, published in the journal Molecular Autism, have important...
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