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Amsterdam UMC leads international consortium in search of chronic fatigue treatment full article here https://www.uva.nl/en/content/news/news/2023/04/amsterdam-umc-leads-international-consortium-in-search-of-chronic-fatigue-treatment.html?cb

preprint Abstract Introduction Post-COVID-19 syndrome (PCS) is characterized by a wide range of symptoms, predominantly fatigue and exertional intolerance. While disease courses during the first year post infection have been repeatedly described, little is known about long-term health...

Long COVID baffles medical professionals, but Australia is helping solve the mystery interview (audio and transcript) https://www.watoday.com.au/national/nsw/long-covid-baffles-medical-professionals-but-australia-is-helping-solve-the-mystery-20230425-p5d34i.html...

Merged thread on the WHO website: 'chronic fatigue'? https://www.who.int/standards/classifications/frequently-asked-questions/chronic-fatigue-syndrome

Abstract Context Implicating patients in research is gaining popularity around the world and is now the reference of many funding agencies. Understanding these partnerships is necessary to grasp this new reality. The experiences of researchers who have involved patient-partners (PPs) in health...

'exercise chronic fatigue syndrome' search this comes up: https://www.cochrane.org/search/site/exercise chronic fatigue syndrome eta: no warning, or advice that the review is 'under review'.

just incase there are people who can't see the replies

Long COVID education should be part of CPD: Report The Government has committed to a national plan and more funds, while the RACGP’s Professor Mark Morgan says more immediate help is needed. https://www1.racgp.org.au/newsgp/clinical/long-covid-education-should-be-part-of-cpd-report

User involvement in a Cochrane systematic review: using structured methods to enhance the clinical relevance, usefulness and usability of a systematic review update 2015 Authors Abstract Background This paper describes the structured methods used to involve patients, carers and health...

Night sweats are common. Mine are usually around 4-5 am (note: not menopause). It is also a circadian rhythm thing. If you do a general search on 'sweats' on the forum you'll see others experiences.

Published: 19 April 2023 Authors: Frade S, O'Neill S, Greene D, Nutter E, Cameron M https://www.cochrane.org/CD014816/MUSKEL_what-are-benefits-and-risks-exercise-people-systemic-lupus-erythematosus full review here...

Effect of transcutaneous auricular vagal nerve stimulation on the fatigue syndrome in patients with gastrointestinal cancers — FATIVA: a randomized, placebo-controlled pilot study protocol Abstract Background Cancer-related fatigue (CRF) is defined as a “distressing, persistent, subjective...

I did a quick search on the Cochrane library on post-covid and exercise; 391 results. Presumably they are using the WHO 'living' guideline/definition of LC? If this was influenced by the Cochrane exercise review for CFS then it is potentially not only ME/CFS patients being harmed by the failure...

just a reminder NG206 Evidence review https://www.nice.org.uk/guidance/ng206/evidence/g-nonpharmacological-management-of-mecfs-pdf-9265183028 ("See the excluded studies list in appendices.", does anyone know where these are exactly?)

DWP issues crucial update for benefit claimants on plans to begin testing matching people’s health conditions to 'specialist assessors'

Abstract Purpose of the review Persistent infections capable of causing central nervous system (CNS) complications months or years after the initial infection represent a major public health concern. This concern is particularly relevant considering the ongoing coronavirus disease 2019...

Posts moved from this thread: Exercise Intolerance Associated with Impaired Oxygen Extraction in Patients with Long COVID 2023 Norweg et al ___________ https://www.vagelos.columbia.edu/research/areas-research/norweg-lab/our-research/restore

Background The aim of this project was to identify the top 10 priorities for childhood chronic conditions and disability (CCD) research from the perspectives of children and young people with lived experience, their parents and caregivers and the professionals who work with them. Methods We...

Abstract Post-COVID-19 syndrome is a new condition that can have a major impact on the physical and mental well-being of children and young people, affecting their ability to access activities including education. Paediatricians and general practitioners need to be able to assess and manage...

Didn't a similar thing happen with ME/CFS funding back in the '80s(?), when a large sum of money was supposedly 'ring fenced' for CFS research (NIH/CDC?) and then later it was shown to have been spent on all sorts of un-related projects. It was nowhere near a billion but still a lot of money wasted.