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  1. Sly Saint

    Observational Study of Repeat Immunoadsorption in Post-COVID ME/CFS Patients with Elevated Beta-2-Adrenergic Receptor Autoantibodies,2023, Stein et al

    Scheibenbogen et al Abstract There is increasing evidence for an autoimmune aetiology in post-infectious Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). SARS-CoV-2 has now become the main trigger for ME/CFS. We have already conducted two small proof-of-concept studies of IgG...
  2. Sly Saint

    Long-term symptom severity and clinical biomarkers in post-COVID-19/[CFS]: results from a prospective observational cohort, 2023, Legler+

    article Biomarkers unveil insights into post-COVID-19 syndrome variability https://www.news-medical.net/news/20230901/Biomarkers-unveil-insights-into-post-COVID-19-syndrome-variability.aspx
  3. Sly Saint

    United Kingdom: NHS Lancashire and South Cumbria ME/CFS

    job ad Senior Clinical Psychologist Lancashire & South Cumbria NHS Foundation Trust https://www.jobs.nhs.uk/candidate/jobadvert/C9351-23-1484?language=&page=57&sort=publicationDateDesc
  4. Sly Saint

    An Interview with Katrina Tangen, Author of Copy That, Copy Cat!

    https://www.goodreadswithronna.com/2023/08/31/an-interview-with-katrina-tangen-author-of-copy-that-copy-cat/?utm_source=rss&utm_medium=rss&utm_campaign=an-interview-with-katrina-tangen-author-of-copy-that-copy-cat
  5. Sly Saint

    USA: John Hopkins Medicine: Chronic fatigue syndrome

    Online Program Why Can't This Child Get to Class? Learn how ME/CFS keeps youth from attending school https://neusha.org/index.php/online-course-overview/?exam_id=1409
  6. Sly Saint

    United Kingdom: Derbyshire Chronic Fatigue Syndrome (CFS/ME) Service

    posting this again because previous post wasn't clear. I thought that the LC patients were being 'treated' at the 'fatigue clinic'? As I said before I can't find anymore info on the review or the workshops it mentions.
  7. Sly Saint

    Acupuncture and other traditional Chinese medicine news and discussion thread

    Merged thread Acupuncture advert banned over long COVID claim (msn.com)
  8. Sly Saint

    USA: Commentary: The pandemic that coronavirus uncovered (Lyme)

    https://www.pressherald.com/2023/08/31/commentary-the-pandemic-that-coronavirus-uncovered/ (Possibly promoting the writers 'blood test' to identify Lyme or LC.)
  9. Sly Saint

    Long-term effectiveness of a [CBT] in the management of fatigue in patients with relapsing remitting multiple sclerosis, 2023, Gay et al.

    Long-term effectiveness of a cognitive behavioural therapy (CBT) in the management of fatigue in patients with relapsing remitting multiple sclerosis (RRMS): a multicentre, randomised, open-label, controlled trial versus standard care Abstract Background Fatigue is a disabling symptom of...
  10. Sly Saint

    UK: Finlay is Wakeboarding for ME

    Raising money for MERUK (part of Walk for ME initiative) https://www.justgiving.com/fundraising/finlaywakeboardingforme
  11. Sly Saint

    A synthetic data generation system for myalgic encephalomyelitis/chronic fatigue syndrome questionnaires 2023,Lacasa et al

    Abstract Artificial intelligence or machine-learning-based models have proven useful for better understanding various diseases in all areas of health science. Myalgic Encephalomyelitis or chronic fatigue syndrome (ME/CFS) lacks objective diagnostic tests. Some validated questionnaires are used...
  12. Sly Saint

    Artificial intelligence in medicine and science

    Documentary not on AI in medicine but AI in general; very disturbing. iHuman https://www.bbc.co.uk/iplayer/episode/m001q1zl/storyville-ihuman
  13. Sly Saint

    Another example of claim of a 'cure' - Reverse Therapy and Mickel Therapy

    Elgin GP tackles waiting times with online practice By In Partnership with Mickel Health Remote Private GP Service https://www.pressandjournal.co.uk/fp/lifestyle/health-and-wellbeing/6093796/elgin-gp-tackles-waiting-times-with-online-practice/
  14. Sly Saint

    UK: University College London hospitals (NHS)

    job ad Highly Specialist Occupational Therapist Employer University College London Hospitals NHS Foundation Trust https://healthjobs.bmj.com/job/197436/highly-specialist-occupational-therapist/
  15. Sly Saint

    Guidance to best tools and practices for systematic reviews, 2023

    Article in the Journal of Pediatric Rehabilitation Medicine is a first step towards combating a flawed system https://www.iospress.com/news/important-guidelines-proposed-to-make-systematic-reviews-more-trustworthy
  16. Sly Saint

    Guidance to best tools and practices for systematic reviews, 2023

    Abstract Data continue to accumulate indicating that many systematic reviews are methodologically flawed, biased, redundant, or uninformative. Some improvements have occurred in recent years based on empirical methods research and standardization of appraisal tools; however, many authors do not...
  17. Sly Saint

    Typing myalgic encephalomyelitis by infection at onset: A DecodeME study, 2023, Bretherick et al

    eta: nice to see a bit of accurate reporting in the short video here (transcript is also available). https://medicaldialogues.in/mdtv/obstetrics-gynaecology/videos/more-severe-cases-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-in-women-shows-study-116329
  18. Sly Saint

    CBT for Tinnitus

    This is the Cochrane database systematic review (as ref above) Cognitive behavioural therapy for tinnitus Thomas Fuller 1 2 3, Rilana Cima 1 2, Berthold Langguth 4, Birgit Mazurek 5, Johan Ws Vlaeyen 6, Derek J Hoare 7 Authors' conclusions: CBT may be effective in reducing the negative impact...
  19. Sly Saint

    CBT for Tinnitus

    I found this site tinnitus.org.uk which reviews treatments for tinnitus. One of the only recommended treatments is CBT for which it says: Cognitive Behavioural Therapy (CBT) - Tinnitus UK there is a link to the full information sheet on CBT for tinnitus (pdf) In it it cites the following...
  20. Sly Saint

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    Independent: Clinics ‘cash in’ by wrongly diagnosing disease Justin Bieber suffers from (Lyme) https://www.independent.co.uk/news/uk/home-news/bieber-bella-hadid-lyme-disease-symptoms-b2400985.html
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