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Copied post Thanks for the link. So, yes, the two cases seem very similar. Death was in essence due to neglect in the sense that feeding support should have been provided and was not. This would have been justified on the basis of a functional disoder ideology that says that people with ME/CFS...

I don't think that is actually what happened. I think the medical people were very happy to palm patients off on psychiatrists. The services were never there any way. The BPS (rather than BSP) people made their careers out of selling their wares but only because the physicians wanted to offload...

I think that is a dodgy generalisation, even if there are some psychiatric nurses like that. In the two units my wife was admitted to none were like that. In the first the nurses seemed just to ignore the patients. In the second they were attentive and helpful. One particular nurse acted with...

Trendy garbage I am afraid.

No I have a dentist appointment that day. The only person speaking who understands B cells is my second in command Maria Leandro from 2000 days. The others are just local people wanting to be seen to be in on the B cell act. If I want to know what is going on I can ask Maria or Pedro.

Me has been likened to a lot of things. What on earth would 'Slow-burn sepsis' mean? Immunology is awash with garbage concepts - the most recent one being NETosis. It literally is garbage - the garbage of dead neutrophils. As far as I have been able to establish listening to my colleagues chant...

The simple explanation is that people who tend to report bad stuff tend to report bad stuff. The stories about 'inflammation' are meaningless - other than maybe as markers of co-morbidities likely associated with deprivation. This 'mediation' analysis is completely bogus. Indeed.

We probably need more than anything a humane place where people with chronic illness of any sort can be cared for on the understanding that they are not being subjected to bogus therapeutic paradigms. My wife had experience of two psychiatric units. One was likely to make anyone worse whatever...

That isn't really possible to interpret. There is no indication what sort of infection there might have been. Massive infection of the spine doesn't make a lot of sense. The 'effects' of chronic fatigue syndrome include being unable to eat and drink unaided and infection consequent on starvation...

If Sophia Mirza died of renal failure that would be most likely due to not getting enough food and drink. ME or CFS would not bring about kidney failure otherwise as far as is known. There may have been an infection but infection is a very common terminal event in people who are starved.

I don't see the reasoning behind any of those statements and they don't seem to fit together much. I am not sure about the 'we' think.

Interesting to see how different the concept of BME was then from ME/CFS now.

Thanks for the comments. Qeios is usually very good at picking up typos and has some slight quirks on punctuation and grammar. It seems as if the doubt 'is' has not been picked up. It may be because it was put up over a weekend.

I am afraid that the argument presented doesn't work very well. It would require research into delusional paranoid psychosis (which my wife suffered from for a while) to make use of reasons acceptable to people with delusional paranoia. That delusional paranoia will include a deep-seated belief...

I don't personally have any specific information about management. Physiotherapists are very familiar with the problem. As to what is the most practical way to avoid contracture probably depends on the individual situation and is beyond my expertise.

The article is now updated at: https://www.qeios.com/read/T9SXEU.3

One thing that interests me at the moment is that people with ME/CFS may be partly misinterpreting the cause and effect relations of symptoms, not because of any unhelpful preconceived ideas but because the disease plays tricks on our natural way of understanding symptoms. My analogy would be a...

I have managed to read the Blog now, having various other distractions. It is full of important points. I had not understood, but I am sure it is the case the Boom and Bust is just another trick therapists have devised to ensure that they are always right and the patients always wrong, so needs...

Its an interesting example. But my mum developed acute wet macular degeneration in her right eye aged 89. It was left alone initially and progressed such that she lost all central vision. She later had some treatment but the damage was done. Over the next ten years she developed cataracts in...

If that saves them dying a particularly harrowing death after weeks of unnecessary pain, it is worth it even if like my mother they are 102. We have recently been through this with mum. The GP and care home staff dithered and deliberately avoided dealing with a problem that ended up being a...