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I don't think it is as simple as that. For a charity of this size the only ongoing 'expert' may be Charles. He will then make use of expert reviewers. So we know the name - Charles Shepherd. The quoted bit is vague because it does not specific the level of involvement or relate that to charity...

That's a clear and concise statement of the situation. I am progressing with writing something to publish open access. I think I need about another three to four weeks, maybe more, but I am beginning to think that I have most of the relevant material. I want to get some feedback from interested...

Life isn't necessarily that simple. You can have a charity where decisions on funding are made by trustees or otherwise people who run the charity and there are some ME charities that work rather like that. But judging quality of applications is not something most people are equipped to do. The...

yup

It's a bit like the quotes on Have I Got News for You from Scottish Plasticine Enthusiasts Weekly How anyone can publish something like this and not then immediately drown themselves in a distant mountain tarn I have no idea.

I think in practice most of the decision making goes through Charles Shepherd. As far as I can see this project was seen as a valid response to the NICE call for better assessment tools for trials. Peer review is a fragile process at best. Charles has to follow the rules. Whether other trustees...

Was that deliberate? Pretence of Recording Outcome Measures

Indeed Or Well-washing? Or even Able-washing. Fit notes instead of sick notes. 'Demedicalising' by insisting you try unnecessary treatments. The irony needs to come in somewhere.

An interesting aspect of this leaflet is that for a GP it tells them absolutely nothing of practical use. Which is not surprising because there are no established facts about Long Covid, except that it covers any feeling ill after Covid. It is the purest of window dressing. It mentions pacing...

This looks to me like the same old amateur mishmash from therapists wanting to sound friendly, except only friendly to Long Covid this time even while borrowing all the stuff about ME/CFS and throwing in garbage about 'PoTS'. This will reassure GPs they are doing exactly the right thing and...

I would be a bit surprised if this could be double blind.I am not sure what another taks with 'no learning effects' means. I wouldn't have thought that the test app was intended to produce learning. I get involved in all sorts of cognitive tasks up and down as days go by and I have difficulty...

I am not sure how useful it is to try to compare severity of symptoms between people. People are likely to rate symptoms differently, even if, if one could tell, they might seem about the same. As @Fainbrog says, the problem is in how you interpret the findings. I think there are all sorts of...

This looks suspiciously like something led by those making a living out of selling antiviral services.

https://www.theguardian.com/society/2024/apr/21/help-disabled-people-england-wales-jobs-axed-benefits-crackdown

I wonder it the study has objective outcomes - since it appears to be unblinded.

This is an appropriate thing to do, for two reasons. One is that safeguards like double blinding are there to avoid bias, which is nearly always bias towards a positive result. A negative result usually stands pretty well without double blinding. The other is that the bar for noting risk of...

I think the problem is actually: People-washing Like greenwashing, which is supposed to be green but is the opposite, people-washing is supposed to be about people but is the opposite. It is about fantasies held by healthcare professionals that they use to justify making a living. These...

It does seem very clear that these PROMs are designed to allow rehabilitation therapists to continue with their habit of setting a goal and judging the efficacy of their treatment on the achievement of the goal - an entirely invalid exercise. It is all very disappointing.

One could equally read it as a rather good sketch on Not the Nine O Clock News. It is self-parody of a level that made me laugh out loud. The bastards didn't even pass their capability assessments. This isn't fair! Fortunately, these people aren't going to be around much longer. The worry may...

Mast cells are a standard component of pretty much all tissues and a standard component of most acute inflammation so I am not sure this tells us more than that apple trees grow leaves in spring.