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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    when you're a young academic, I assume these theories can come across as appealing and intuitive and can seem to explain lots of confusing things.
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    Open US: The CHROME (CHRonic Fatigue SyndrOME) study

    What are they looking for exactly? do they say?
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    International: IACFS/ME - International Association for CFS/ME, IACFSME

    I'm not sure what the best approach is here.
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    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    Reference 24 in the bit quoted about the physiological explanation for LP is a citation of Phil Parker's paper in the Romanian Journal of Experiential Psychotherapy. Just saying.
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    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    This was astonishing to me as well. It just accepts the entire premise as if it's valid. And they hang everything on the "evidence" from Crawley's bogus study. I don't understand why Fred Friedberg, who is the editor of Fatigue, would let this go through.
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    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    And it is published in Fatigue. that means they likely tried to publish it elsewhere first and got rejected. But it is very weird. As @Hutan says they just have decided to make the linkage themselves between CBT and LP. The idea that they are writing papers with Phil Parker just seems really out...
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    [Blog] Beyond the NICE guideline: MEComms© and the case for a public inquiry

    My goal is to look at the research and related activities, and push the journals/academics/agencies where I can for accuracy and proper methodology. In terms of "PR," Adam's right that that's not my primary goal or function, but I certainly hope others can use what I post or publish to good...
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    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    Yes, close--he said that in relation to CODES, the study of CBT for psychogenic non-epileptic seizures (PNES) because he knows it works from his clinical practice.
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    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    Nice! Another journal should be publishing a similar correction soon, also with Professor David as senior author.
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    Influence of Priming on Patient-Reported Outcome Measures: A Randomized Controlled Trial, 2016, Claessen et al.

    I haven't read the paper. Are the researchers seeking to expose this sort of priming as a concern?
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    Lightning Process study in Norway - Given Ethics Approval February 2022

    Maybe that Crawley study was criticized because it violated multiple rules of scientific research?
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    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    No, the Highlights "correction" was in the GETSET paper. I included a separate item about the GET safety paper. That hasn't been corrected. I've revised the blog headline to make clear there are two separate items there.
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    Psychiatry's modern role in functional neurological disorder: join the renaissance, 2021, Begue, Perez et al

    yes, the CODES trial. I wrote a few posts about it: https://www.virology.ws/2020/06/11/trial-by-error-a-kings-college-london-press-release-hides-the-bad-news/
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    NICE ME/CFS draft guideline - publication dates and delays 2020

    was this because of her public tweets about this issue?
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    Interventions that manipulate how patients report symptoms as a separate form of bias

    Actually, the decision by the ethics committee in Norway against the proposed LP study there basically referenced this sort of bias as a reason for rejecting the study. This describes the bias in a nutshell. "NEM believes that the method poses a risk that the intervention may affect the...
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