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    Functional Neurological Disorders - discussion thread

    @Gaspard, your perspective is very helpful. thanks for sharing it.
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    Functional Neurological Disorders - discussion thread

    I would agree with this. The analogy has broken down in their own terms, but it breaks down on other levels also.
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    Functional Neurological Disorders - discussion thread

    I don't think it implies that all of them have. I suppose someone could read it that way. To me, it implies that as a general rule these disciplines and specialists have taken that position. I think that's defensible, given the DSM and all that. I don't really understand your second point. They...
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    Denmark: Open letter to health politicians from Danish ME Association with impressive list of signatures

    I saw that about McGregor, but I've never seen a footnote linked to a name on a list, and if Hornig was a co-author of the other thing it would be consistent. It's a bit weird. Anyway.
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    Functional Neurological Disorders - discussion thread

    I wouldn't be too hard on them. Many have suffered major abuse just like ME patients.
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    Functional Neurological Disorders - discussion thread

    There should be a term for "neurological symptoms that we cannot diagnose at this point," and "functional neurological disorder" is theoretically as good a phrase as any, just like "medically unexplained symptoms" would be fine if it weren't misused to mean "medically unexplainable symptoms."...
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    Denmark: Open letter to health politicians from Danish ME Association with impressive list of signatures

    Yes but does anyone get why footnote #4 and #5 are by Hornig's and McGregor's names, respectively?
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    Functional Neurological Disorders - discussion thread

    I'd never heard of Richard Sykes. Here's another article, specifically about CFS: https://doi.org/10.1192/apt.8.5.351 This is his bio: Richard Sykes is the Director of Westcare UK (155 Whiteladies Road, Clifton, Bristol BS8 2RF, UK), a registered charity for people with chronic fatigue...
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    Functional Neurological Disorders - discussion thread

    thanks! would love to see if you find. or I'll look. don't stress out about it. Added: Found it. https://philpapers.org/rec/SYKMUS
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    Articles on ME/CFS by Margaret Williams and Professor Malcolm Hooper 1986-2018 With contributions from Eileen Marshall (1994-2007) and others

    This can be true but they are also invaluable and are fascinating to read. I have read a lot of them over the years, including before I wrote anything about PACE, and have found a lot of useful information. Magical Medicine really captures what happened in PACE, but it is true there is a lot to...
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    Opinion piece in Nature: A toast to the error detectors

    I see she is at UC Davis. I will touch base with her and introduce myself.
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    Functional Neurological Disorders - discussion thread

    Hm. What do you mean that it has been "formally published" as a fallacy?
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    Trial By Error: My 2011 Exchange with White et al about Case Definition

    Exactly. So using a clinical case definition in research can be problematic.
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    Trial By Error: My 2011 Exchange with White et al about Case Definition

    That's right. That's how it originally appeared when they sent the letter in. I never noticed before that it was likely missing a word.
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    Functional Neurological Disorders - discussion thread

    No, thanks for pointing it out. should be fixed now.
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    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    The estimates for how many people have ME also seem to indicate that the huge majority of those don't know they have ME and/or haven't been properly diagnosed. That means the audience is not really the quarter million in UK who are estimated to be ill but the 10 or 20% or whatever of that group...
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    Outcome Measures for Functional Neurological Disorder: A Review of the Theoretical Complexities, 2019, Edwards, Stone et al

    I can't seem to access this through the Berkeley online library access. Has anyone seen it?
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    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    it will be interesting to look at what changes were implemented for the full trial based on the feasibility trial, because I'm assuming they folded in all the feasibility trial participants into the full trial, a la LP study. anyway it's only Christmas Eve early afternoon here.
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