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In my experience, Valtrex worked—it increased my energy significantly and decreased brain fog. But eventually it stopped working. I think we can agree that these drugs definitely do help some people, even though we have no idea of the mechanism involved (probably has nothing to do with...

https://www.google.com/amp/s/www.forbes.com/sites/robinseatonjefferson/2019/01/29/israeli-scientists-say-they-will-have-a-complete-cure-for-cancer-within-a-year/amp/ Well now that there will be a complete cure for cancer, we can load up on the cyclophosphamide.....no problem....

Thanks

Hi, Has anyone tried colchicine? According to the Davis group article on blood cell deformability, colchicine can affect cell deformability. “Based on extensive literature search, we found only one of the drugs, colchicine, which was prescribed to one patient, has been shown to slightly...

Hmmm Harriet Hall— remember her? Someone referred to one of her CFS articles as “a very intriguing piece of psychopathology.” https://forums.phoenixrising.me/index.php?threads/harriet-hall-cfs-rituximab-revisited-in-science-based-medicine.42499/page-2

Ok I’m confused... if the actual treatment is the [temporary] destruction of the immune system, then why are the stem cells needed? Are there diseases where the stem cells are needed to reboot the immune system?

https://www.vox.com/2019/1/15/18182095/ms-multiple-sclerosis-stem-cell-transplant She is usually a good journalist, but this article misses the boat I think.

But it seems to be long-lasting—they didn’t want to use the word cure. Stem cells might not be needed—authors mention this.

@Jonathan Edwards, interested in your opinion of this JAMA study ( for ms, not Cfs). Thanks

These are pretty strong findings

https://jamanetwork.com/journals/jama/article-abstract/2720728 Link to original study

https://www.medscape.com/viewarticle/907414 Chemotherapy for Relapsing-Remitting MS? Might need to logon to access

This is in NYC, not Cornell/Ithaca

This.... http://reductress.com/post/how-i-survived-my-battle-with-unsolicited-advice-about-my-battle-with-depression/ Actually, the main reason I'm not so keen about telling people I have this thing....the great, always helpful advice I get....

Hi, Does anyone know what her mystery potions are for 1) premenopausal women 2) post menopausal women and 3) men are? I assume it’s different from the GWI potion?

No increase in cancer incidence detected after cyclophosphamide in a French cohort of patients with progressive multiple sclerosis. Le Bouc R, et al. Mult Scler. 2012. Show full citation Abstract BACKGROUND: Cyclophosphamide is still used in progressive forms of multiple sclerosis (MS) in view...

True. It could be placebo effect or natural improvement. It might also be a treatment effect. As mentioned above, it is not possible that people with ME/CFS respond to cyclo differently or at lower levels than people with cancer or rheumatic disease?

@Milo mele kalikimaka is Hawaiian like here or here..more entertaining

Yeah for more clinical trials......(less for fecal microbiome studies?) There are now 4 or 5 five drugs that might work for ME/CFS Ampligen (needs another study, apparently) Cyclophosphamide (from Fluge/Mella)--but maybe no phase 3 study possible Suramin and Copaxone (From Ron...

Maybe. But this will take a long time ~15-20 years (including drug development/approval). Even if targeted ME/CFS drugs are developed, they are also likely to have potentially detrimental side effects. I'm guessing that the developed drugs will look something like the Disease Modifying Drugs...