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  1. Cheshire

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    This is a big problem. That's why, before any solid study is published giving us an idea of what the rate of structural problems is in people presenting with ME symptoms, it is premature IMO to tell people to make an appointement with these surgeons.
  2. Cheshire

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Thanks a lot @Michiel Tack for gathering all that. It's essential that every patients have access to all information available before making any decision.
  3. Cheshire

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    There is absolutely no basis to make such claims. This is way beyond anything that can be shown yet.
  4. Cheshire

    Psychometric properties of the Cognitive and Behavioural Responses Questionnaire (CBRQ) in adolescents with CFS, 2019, Loades, Chalder et al

    There is the Behavioural responses to illness questionnaire (Chalder and Moss-Morris) I guess it's an older version of this one, but I'm sure it can give a general idea of what it looks like: https://pdfs.semanticscholar.org/11eb/53aafd944bed31bb2ae6fac716cac8a7c2c3.pdf
  5. Cheshire

    Retraction of recent large trial on CBT for schizophrenia (2019)

    Link to the retracted study.
  6. Cheshire

    'Activist Editor' Richard Horton of The Lancet receives $100,000 Roux Prize

  7. Cheshire

    Resting-state functional connectivity, cognition, and fatigue in response to cognitive exertion: a novel study in adolescents with CFS (2019) Josev

    https://link.springer.com/article/10.1007%2Fs11682-019-00119-2
    • Cheshire
    • Thread
    • 2019 adolescents brain brain imaging cognition exertion fatigue fmri knight me/cfs paper
    • Replies: 30
    • Forum: ME/CFS research
  8. Cheshire

    "Tired all the Time" (academic book) by Marie Thomas

    Posts relating to this article (Measurements of Recovery and Predictors of Outcome in an Untreated CFS Sample (2019) Thomas et al.) have been moved to a new thread.
  9. Cheshire

    More PACE trial data released

    The overlap between entry and recovery criteria is also something that is easily understandable by non scientific people. (At entry, 65 is a score considered to correspond to great disabilty, but the same result (65) is used as a sign of recovery at the end of the trial).
  10. Cheshire

    Assessment of the scientific rigour of RCTs on the effectiveness of CBT and GET for ME/CFS: a systematic review (2019) Ahmed et al

    I don't really understand what his point exactly is... Edit: Tweet deleted, see @Esther12 post below.
  11. Cheshire

    More PACE trial data released

    Doesn't every patient have a number assigned? If so, why didn't QMUL provide it?
  12. Cheshire

    Assessment of the scientific rigour of RCTs on the effectiveness of CBT and GET for ME/CFS: a systematic review (2019) Ahmed et al

    For a bit of background, about the authors (all working for Panaxea, "an independent consultancy company spun-out from the University of Twente, Enschede, the Netherlands") http://panaxea.eu/who-we-are/ I wonder why they did this review and who paid for it.
  13. Cheshire

    Caroline Struthers' correspondence and blog on the Cochrane Review: 'Exercise therapy for chronic fatigue syndrome, 2017 and 2019, Larun et al.

    So a new deadline, end of may.
  14. Cheshire

    Blog: The PACE Trial: How a Debate Over Science Empowered a Whole Community [Carolyn Wilshire/ME Association]

    Thanks @Carolyn Wilshire
  15. Cheshire

    More PACE trial data released

    And it proves that, unlike what they claimed, it's still possible to access the data.
  16. Cheshire

    More PACE trial data released

    What an achievement! Thanks a lot @JohnTheJack
  17. Cheshire

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Posts relating to Simon Wessely have been moved to this thread.
  18. Cheshire

    Cognitive behavioural therapy for ME/chronic fatigue syndrome is not effective. Re-analysis of a Cochrane review, 2019, Vink & Vink-Niese

    As a reminder, the authors have alreay published an article on the Cochrane review (see here). We discussed it here. Edit: about the exercice review, while the new one is about CBT, thanks @Trish
  19. Cheshire

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Trial By Error: A Reuters Update http://www.virology.ws/2019/04/18/trial-by-error-a-reuters-update/
  20. Cheshire

    A general thread on the PACE trial!

    A quick sum up of the flaws of the PACE trial
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