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I don’t want to be hypercritical and he’s entitled to say what he thinks but if I step back and look purely in terms of its effectiveness as an awareness tool I think finishing with the words it’s crazy it’s insane is problematic. I decided not to share the video because I didn’t want friends...

It’s not a question of just challenging GET and saying proper CBT is ok but not BPS CBT that pushes you to increase activity. It is a question of going back to the thinking behind the alleged treatment that patients are being offered whatever it is called because they have rebranded and...

My guess is a draft page that got accidentally published before final/signed off

Well that’s commendable @It's M.E. Linda being a PPS and still making the effort to be there and while he wasnt allowed to join the presenters he was making his support very clear rather than hiding behind his new job and fading away. I hope he is able to have some influence from the inside of...

Oh well hopefully catch up with the video later on. Gave up trying to find a link now watching the Bake Off final

I think we were all very much ready for something positive after several negative days. The chair was pretty obvious in his views so let’s hope the committee do get some time allocated from the parliamentary business managers. I think the cross party backbench support is working very well.

As we’d not heard from him I contacted Russell through MEA Facebook which is his job. He doesn’t get onto S4ME these days as his time is spent on work/rest. I keep meaning to email MEA comms guy who was appointed last year to suggest he joins or gives it as a role to one of his team.

I said this before Idris is a great bloke and Brit but Denzel all the way for me and he’s got a good CV for it - Philadelphia and The Pelican Brief

Nice one @Barry i think it will be clear that actions are under the microscope

A lot of patients have adopted the concept of the benevolent lie when involved with NHS CFS clinics ‘yes here’s my homework activity schedule - I’ve been doing extra activity and I’m not making it up honest’

Agreed but it just depends on their approach to updating pages. in some organisations with a publishing team they might create a fresh version that can be checked and approved for publication and if someone accidentally pushed that live rather than overwriting the existing page at the existing...

i saw somewhere that lions spend about 20 hours resting and sleeping and four being active. Bears hibernate. There’s nothing wrong with animals adapting to their environment. I also saw that some people are night owls probably because their ancestors were more adapted to keeping watch late at...

Because the newer page is orphaned and won’t have received anything like the number of page views it wouldn’t surface very high on any google search rankings

Very good point @Barry is there a feedback function on the page? From my experience with getting stuff published at work it is conceivable that it is a web publishing error where the version that’s currently an orphan page should have replaced the other version but the person pushing it live it...

So how are these professional organisations held accountable for their performance

@dave30th in case you’ve not seen this thread

Whoever writes a summary needs to cover the correction covered in @Dx Revision Watch posts on this thread.

Bland as ever back to fence sitting

It was inevitable they wouldn’t let it go down without a fight.

They won’t be publicly keeping NICE on the hook but they will be in the discussions to highlight the debunking and the patient experience which NICE claims to take seriously now.