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:wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf::wtf: “Do gooders” who think they’re on your side are more dangerous than out and out snake oil merchants

Seems strange that if it takes two minutes it isn’t done routinely by GPs before giving CFS diagnosis

@borko2100 i wouldn’t want to use stimulants as my experience with adrenaline nowadays is that it tips from a temporary boost into overload PEM making neuropathic pain the worst I have it and giving me the internal shaking which I only get at my worst. I can’t cope with caffeine at all either...

I think if I’ve only had a few hours sleep I tend to be running more on adrenaline especially if I have something to do that day. I used to have very little sleep and still get up and travel down to London and do long meetings and travel home again out of the house 13 hours. I think it’s...

I’m hoping there isn’t some way out for him of asking Chew-Graham to revise the wording and giving her 6 months to come up with something a la Cochrane. Cynical - moi o_O

Assuming the correction is adequate is a very good point. I’m hoping this will actually be corrected on the paper rather than in some little note hidden away in the dark recesses of the website

Nice one @dave30th

:D Fake tripe then

Top sarcasm

Stuff like this is a waste of words. MUS needs to go full stop

I think you’re mixing him up with someone else ;)

I like that this is happening in Oxford

Yes Alzheimer’s Research UK are a good model for ME organisations @Cinders66 i follow them because of family connection with dementia. One of my parents had severe dementia for years. When they died we asked for donations to ARUK and raised a few hundred quid. When we first got involved in...

So this is a much bigger deal than the UK Parliamentary debates?

On this basis the people making money out of CBT should be pumping money into ME charities that support it :whistle:

I’m hearing that people in my area are being offered GET through the reorganised NHS Service which is community based alongside pain service as opposed to previous hospital based (no doctor involved) service which had moved to a PACE lite management programme approach. Seems the reorganisation...

It’s so difficult to know if a supplement is making any difference to me. I think I’m fairly sure magnesium helps as I’ve run out a couple of times and not realised and then after 2 or 3 days wondered why I was aching more. But changes could be for many other reasons related to activity levels...

Maybe ask if you can try nortryptiline it’s supposed to be less of a sedative hangover.

im copying a tweet from Alzheimer’s Research UK who are campaigning for 1% of the cost to the U.K. economy of dementia to be spent on dementia research currently it stands at 0.3%. They did a petition and got a minor celebrity to present it at Downing Street. The point I want to make is that...

Sticking my nose in here but I had a look at the ANMES site info under what is ME. In my opinion it isn’t frank enough about prognosis. It is possible to give out a more realistic message as shown by ME Association content on this issue...