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Me too, but I worry that they may still "know" me, due to the few people that I'm friends with, the email address I provided at sign-up, and the demographics it has of me by default (my country, IP address, etc.)

@Tal, just to put you in the picture, you'll be aware now at S4ME is a forum for discussion of the science around ME. So we don't just want to hear "it worked really well, and hey I'm cured!", we want to hear about specific medications and symptoms and treatments and everything. We want to work...

I see what you're saying, @arewenearlythereyet. But would you have got the same benefit from just having had pacing and delayed PEM explained to you - the idea of having to establish what you can do each day without too much payback later? Instead of having your behaviours caricatured, would...

Haha, in my line of work, the dress code is "wear clothes, preferably clean ones". Actually, the clean part is optional for a lot of academics. Dressing down is a mark of quality in academia. Wearing a suit makes you look like a phony, like a used car salesman. It is a no-no (except perhaps in...

No, what they think is that after a "boom" we don't enjoy the sensation of having exerted ourselves too much - we confuse that very normal set of sensations with having a disease - so we crawl back into bed. Its exercise as a phobia. So, if you had a spider phobia, you probably shouldn't try to...

I think the boom and bust idea is way more nasty and insidious, @Keela Too. Its way more than a reasonable person trying to get things done when they have a good day. The idea succeeds in somehow labelling any level of activity that a patient engages in as pathological. The patient cannot win...

I think there is probably selection bias too, in the sense that if takes a lot of hard work to even get an ME/CFS diagnosis (took me three years, and I was very severely ill). Those with less persistence might fall out of the picture because they just gave up with doctors.

Yes, and the whole behavioural-deconditioning model kind makes explicit the deconditioning thing.

Wow, they admitted they left out actigraphy because they knew that GET doesn't genuinely increase activity. Most here suspected this was the reason. But there it is, in black and white.

It is very honest for a study in this domain... Usually, people in this area just keep looking till they find something in their data that does support their conclusions and report that. These guys actually admit that the results surprised them! One of these days someone in the area will...

Thank you for posting, @Jo Best. Its really well written. A tiny bit over-emotional in parts.- but its hard not to be!

:rofl::rofl::rofl:!! Some fantastic imagery there! Go rover, go!

Haha, not surprising. I'd cheat too if my home life was being threatened by my doctor.

to White. But I've clarified anyway.

The statement @JohnTheJack is referring to was in Sharpe's formal letter to White declaring any conflicts of interest: Given that he is a doctor, this statement signals that he has no prior beliefs regarding which treatments are more effective. But in the very same statement, he's describing...

Would it be a digression to ask you about the airline safety example, @Lucibee? Afraid I'm ignorant about it.

Thanks all. It is so bizarre to see them still making major decisions as how to analyse the data four years after they first started collecting it, and almost as long since they published their trial protocol. I wonder why? Bad planning? Or were they motivated by the results they were receiving?

Yes, the problem in the past has been trying to argue the case based on evidence of an alternative pathology. That places the burden of proof on the person making the claim, and it is something psychosocial researchers capitalise on to support their arguments. Their explanation stands because...

I think the point was, the BPSers control a lot of the high impact journals. They would block any counter-narrative quick smart. Do people remember that awfully biased rejection this group got when they tried to submit to the BMJ? Similar article, I think. The reviewer banging on about how he...

Oh, no, I meant I wouldn't support any project he was leading. As far as I understand it, CMRC is just a loose association of researchers, those researchers still have to propose projects, and that's where the work will happen, right?