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Oh, who, out of those who've posted, gets adequate sleep? Or for those that get adequate sleep only sometimes, how are your cognitive problems on days following the good sleeps? It just occurred to be that I get 9 hours sleep a night, every night without fail, whatever the cost, even if it...

Thanks everyone, really interesting and useful. Spatial problems are clearly much more common than I realised. Is it true to say that they mainly occur in situations where you're directly interacting with the environment? Like sort of visuo-motor coordination stuff rather than abstract spatial...

@petrichor, it takes a while to work out how to get the core of a study, how to tease apart what the intervention is actually designed to do from what the authors "go on about". And its easy to be misled when the study text is a little loose and free. I think this is sometimes done to make the...

Yes, it was. Sorry, I thought it was huge news in the UK, that people would know I was referring to truly nasty stuff. There was an article - in the Guardian I think - about some of the topics, which were utterly chilling. The issue reminds us that sometimes activism in academia is appropriate...

@petrichor, can you tell us about your experiences as a patient undergoing GET?

Yes, it is a direct contradiction. I think we are finally on the same page. There are lots of these in work of this nature.

:thumbup::thumbup::trophy@ There should be a "like with bells on" button for this!

@Valentijn, you can read it here. Its actually not a good example of "soft GET" or "GET-that's-actually-pacing". Its hard GET. The pacing was done as a precursor to the GET proper to "establish an initial achievable level of structured regular exercise (e.g. walking), in addition to activities...

Thanks to those who continued to patiently explain things after I logged off last night.

I've no doubt that Alastiar's experience, gleaned as it is from highly constrained 15 minute consultations with a selected subset of patients, is way more valuable than the collective experience of us patients here on S4ME. We are way too "vociferous". If you want to understand the lived...

I love that use of the term "pre-disposing illness". Just to leave no doubt he thinks that your psychological freak-out about exercise is only tenuously connected to that illness.

I must go now, @petrichor, thanks for the discussion. If there's anything else you'd like to add in the discussion or if you have any questions about CBT, psychotherapy or behavioural interventions or anything else in my line of work, just tag me.

Its not easy to pick it all apart, I know. The whole thing is further complicated by the doublespeak people use in the area. Researchers will say certain things that conceal what they really think, to make their treatments more palatable to patients and therapists. Have another think about your...

F****adoodledoo!

A lot of sociology around this area is much more assumption free. They don't make any stand on what the truth is around causation, they just describe the social phenomena surrounding patienthood - invalidation, the search for meaning, seeking permission to occupy the sick role, etc.

:rofl::rofl::rofl::rofl:!!! LOVE it when people support their statements by mentioning some other person who believes as they do. "Alien abductions occur frequently (Ted Smith from down the road, Travis Walton, Elvis Presley)."

Yea, wot @Esther12 said. Pacing and GET are mutually exclusive approaches, based on entirely different illness models. Pacing involves discovering and working within your limits. GET involves stretching those limits. Any programme that encourages people to gradually increase their exercise is...

Now, look at the text you've just quoted. What is it saying? That in addition to the CBT I described above, they also encouraged people to improve their sleep hygiene by prohibiting daytime naps, etc. What do you think about that? What assumptions is that approach based on and do you agree with...

Arghhh!!!! :mad::mad::mad::mad: You must have been ready to explode!

That's was a really useful post in increasing my understanding, @Jonathan Edwards. I guess that's what was running through mu mind about dual diagnosis of autoimmune disease+CFS. The fatigue is probably linked to the autoimmune disease. But in @TrixieStix's case, there really do seem to be...