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The (sort of) hypothesis they seem to be testing is based on global RA rates - simplistic comparisons between high RA populations (USA) and low RA populations (SE Asia) hence the 'Western Diet' model; there are all sorts of confounds in this approach; I guess one can say this is all very...

Not for sending out but a link to the MEA Purple Book https://meassociation.org.uk/2020/08/now-available-the-2020-me-association-me-cfs-pvfs-clinical-and-research-guide/ would be good to include. It's free for UK medics but I guess non UKers would need to order it from the MEA or simply purchase...

Not (necessarily) contrast bathing - a review here of a small number of immersion studies, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6479732/ ankle bathing would seem to fall in the group of 'extremity bathing'.

Charity Governance Code Openness and accountability "Communicating and consulting effectively with stakeholders The board identifies the key stakeholders with an interest in the charity’s work. These might include users or beneficiaries, staff, volunteers, members, donors, suppliers, local...

Why the huge gender bias ? There's no evidence for massively higher rate of COVID19 infection in females, no evidence for majorly higher hospitalisation rates and so far no certain evidence that post COVID19 symptoms are more prevalent in females. If as the study suggests moderate and vigorous...

Broken' FoI system must be fixed to combat rising government secrecy, warn editors and MP "In an open letter to information commissioner John Edwards organised by Open Democracy, the signatories called for clearer protocols, better-funded oversight and harsher punishments for those flouting FoI...

Looks like this is targeted at parents who are expecting their bambini to play for Roma or win the Giro !

From: https://edzardernst.com/2013/12/the-myth-about-traditional-chinese-medicine/ "What is being offered in our country to patients as TCM is a construct that was created in China on an office desk which has been altered further on its way to the West. Already at the beginning of the 20th...

Bansal doesn't use the term "Parasympathetic Nervous System Dysfunction" but it seems to cover some of the general pathology he (unreferenced) refers to - this paper: Parasympathetic Nervous System Dysfunction, as Identified by Pupil Light Reflex, and Its Possible Connection to Hearing...

Absolutely. I don't see what Hanson said as being merely political, to me it sounds to be a logical parsing of the research challenge. Of course it depends on what the research objective is but I don't see at all problematic to say LCS and GWS do not offer useful populations for the...

If we consider ME/CFS to be a disease with a unique pathology or a set of diseases with common symptomology and unique pathologies, then the equation PVS = ME/CFS does not hold until we have evidence of the respective pathology or pathologies. It might be for example, that PVS or other temporal...

It's a definitional problem, Long Covid Syndrome includes so many pathologies that there can not logically be a simple equivalence of LCS = ME/CFS. Occurrence of classic Post Viral Syndrome and long term ME/CFS following COVID19 infection is an important area of study but it needs to be...

This is yet another study which shows that any link between ME/CFS and the spectrum of illness covered by "Long Covid Syndrome" is tenuous or otherwise is somewhat discrete within the LCS affected population. The link with obesity is unsurprising as that is a known predisposition for more...

Wasn't sure where to put this, it's important in understanding what does and does not get published - twitter thread:

https://www.firmenwissen.com/en/az/firmeneintrag/20095/2152034173/ME_CFS_RESEARCH_FOUNDATION_GGMBH.html "ME/CFS Research Foundation gGmbH has its registered office in Hamburg, Germany. Its current status is listed as active. The company is registered at the Trade register at the local court of...

Scepticism is certainly justified - I wonder however whether this is not a political move "away" from the failed CBT/GET focus rather than a retrenchment into it. If the NIHR is true to its word...

Agree - though more broadly it is matter of appropriate allocation of resources matched to aims and ambitions. As an example for comparison, historically MEA and AfME have had different staffing models where the former has a much lower staffing cost, yet the MEA can not be said to have had...

I don't like websites that are seeking my money and which don't have an upfront of: who (named persons with whom the buck stops), where (physical address) and what (simple statement of what is being payed for). The lack of that in a service which by definition is targeting a population which...

Terms of use: https://neuroproactive.com/wp-content/uploads/2021/04/Neuro-ProActive-terms-and-conditions-12-08-20.pdf Company data: https://find-and-update.company-information.service.gov.uk/company/05780057

Focusing on disabled children is the whole point, it's why the report was created in partnership with Disability Rights UK - their member organisations list: Member organisations includes AfME. Disabled kids often have a greater need to be given time/space for activity and to have...