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CAG register probably isn't relevant in this case - only applies where consent to access to medical records isn't sought https://www.hra.nhs.uk/approvals-amendments/what-approvals-do-i-need/confidentiality-advisory-group/ under provisions of section 251 of the 2006 NHS Act...

Middle class sprawl: Locating the psychologesque in the history of psychology, 2021, David C Devonis Abstract To add to the system of classes already present in the recent historiography of psychology, a new and broader class is proposed, the psychologesque. This class includes, along with...

Lindus are a start up - https://find-and-update.company-information.service.gov.uk/company/13298185 incorporated only in March this year, apparently as a new entrant into the medical trials recruitment business - there are other established players. Anyway looks like Lindus has some way to go...

Perhaps there's some history that I'm unaware of. Was Julia Newton ever given a hard time by ME/CFS patients and organisations ? I've only ever seen complimentary stuff about her and she's had the confidence of the MEA and ME Research as well as AfME so I'm a bit puzzled. According to the list...

From looking up the details for the replies I made on the Cochrane Review thread: https://www.s4me.info/threads/independent-advisory-group-for-the-full-update-of-the-cochrane-review-on-exercise-therapy-and-me-cfs-2020-led-by-hilda-bastian.13645/page-85#post-394030 my reading is that ME/CFS...

Impossible to tell without the full report but yes - method here is key, together with unaddressed confounds. Peppermint is physiologically active, anyone who has ever sucked a tic tac knows that it gives a burning sensation to the mouth so looking at peppermint for medical use isn't about...

I have major trust issues with this paper. Author affiliations: 1Nutrilite Health Institute, Shanghai, China 2Plants for Human Health Institute, North Carolina State University, Kannapolis, NC, United States 3Nutrilite Health Institute, Buena Park, CA, United States 4School of Public Health...

Succinctly put:

Not sure about about platform size but Jim Coyne has been at it for a while https://www.s4me.info/threads/coyne-stop-using-the-adverse-childhood-experiences-checklist-to-make-claims-about-trauma-causing-physical-and-mental-health-problems.1048/ also on Twitter https://twitter.com/CoyneoftheRealm

The CRESTA clinic is not the Chronic Fatigue Syndrome Clinic - CRESTA is located within the Campus for Ageing and Vitality where Julia Newton has her Falls and Syncope clinical practice, the CRESTA page lists the lead consultant as Dr Adam Evans...

The structures at Newcastle are somewhat opaque but I think it would be wrong to assume that Julia Newton is the clinic lead. The service is described as: "Chronic Fatigue Syndrome/ME therapy psychology service" and is provided under by the Psychology in healthcare > Adult health psychology...

If the evidence is sound then the recommendation should follow the evidence, the challenge is putting that into practice. The NHS is short of trained personnel across the board, swapping a low cost prescribing regime for a higher cost, high personnel demand regime doesn't seem achievable in the...

Obviously we hope for clarity, but we probably should be prepared for all sorts of sub groups in what is likely to be a heterogeneous population, and where sub groups randomly overlap with other known limited specificity targets e.g Genetic risk factors for vasculitis...

Yeah but you know - Yuppy Flu init.

It does look really horrible when presented like that but I wonder if that is perhaps not a fairly standard referral statement, where the content is arrived at by a) the budgetary limitations inherent in the commissioning contract and b) a competence and safety assessment of the staffing level...

I don't see science proceeding from someone who goes on Twitter to make definitive but wholly unsupported claims about what ME/CFS is. And I'd stay a long way from anyone wanting to pump Fibrinolytics/Anticoagulants and Drugs against viral and bacterial load into patients with no clear...

The lack of any statement of hypothesis has me wholly confused - instead the authors proclaim solely from authority i.e their reading of unidentified literature and unreferenced experience of treatment, they "propose to consider CFS as a Vascular Disease in which Endothelial Dysfunction and...

Ever since Harold Wilson's 'White Heat of Technology speech 60 years ago, bright & shiny has been a standard for positive imagery for ministers to associate themselves with, so Javid isn't special in that sense. Equally the standard view in Westminster is to avoid health controversies because...

I think this was solely down to the DecodeME study - a bright shiny bauble of cutting edge research which is the kind of thing Javid would see as important, I doubt that ME/CFS itself was particularly of interest although there might have been some thought around distancing the SoS from the...

Strategically patient orgs have to decide whether to adopt a year zero approach, refusing to engage with anything or anyone that has gone before (IMO opinion a dreadful idea) or engage with people of goodwill in the existing services - my take is that Peter Gladwell is very likely someone the...