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  1. NelliePledge

    Mike's EU Marathons

    Hi Mike if you do get in touch with any people/organisations there maybe you could mention the petition to them?
  2. NelliePledge

    Exploring the complexities of illness identity and symptom management in seeking a diagnostic label of (POTS) 2023 Iris Knoop, Moss-Morris et al

    So what do they mean in the conclusion by the self regulatory process being initiated from the onset of symptoms. Changing perceptions??
  3. NelliePledge

    Covid-19 vaccines and vaccinations

    I wasn’t given any info and because I was distracted by having the Covid as well as the planned flu vaccine I was expecting to have I didn’t think to ask. I had a look on the record I can see online and there wasn’t any detail. I feel like the surgery have got enough on their plate so I will...
  4. NelliePledge

    Thesis Critical Review of the [CFS] Literature (1/3 of DClinPsych thesis), 2023, Bird

    Perhaps the 2021 guidelines change has enabled people who disagree professionally to actually articulate their own opinions rather than being politely silent to avoid conflict
  5. NelliePledge

    Internal tremors and vibrations in long COVID: a cross-sectional study, 2023, Zhou, Iwasaki et al.

    Presumably participants were asked about any prescribed or non prescribed medication? as tremor is a common side effect of pregabalin which is fairly commonly prescribed also gabapentin
  6. NelliePledge

    Somatic symptom disorder: a major but underestimated psychiatric disorder. (Rosmalen et al.)

    Excessive thoughts feelings and behaviours As perceived by people of an ablist mentality
  7. NelliePledge

    News from Cochrane

    We had this in the UK Polytechnics. they all changed to Universities in early 1990s I think it was
  8. NelliePledge

    News from Cochrane

    Defensive action -?retreat to stronghold
  9. NelliePledge

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Indeed because there will always be an audience of people who don’t know any better including naïve journalists.
  10. NelliePledge

    UK: University College London hospitals (NHS)

    All the best with it @BazzaBoyle feel free to message me if you need a sounding board while you’re going through the appointments :hug:
  11. NelliePledge

    UK: University College London hospitals (NHS)

    I get what you’re saying @BazzaBoyle about doing the recommended treatment so it doesn’t mean you’ve got negative letters on your medical record with a view to dealings with DWP. I did the CFS clinic course in 2016 so my employer couldn’t say I wasn’t getting available treatment & had to give me...
  12. NelliePledge

    UK: University College London hospitals (NHS)

    no they shouldn’t :banghead: @adambeyoncelowe
  13. NelliePledge

    Covid-19 vaccination experiences

    Quick update from my double jabs on Saturday- not sure which Covid jab type I had. Flu arm is fine, Covid arm is still pretty sore and I’ve got standard PEM from the outing which involved a bit of walking and queuing. But no headache or any other additional symptoms.
  14. NelliePledge

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Yeah and what does he think about the important questions raised by stats on late diagnosis of cancer, people with MS saying they were previously diagnosed with cfs, etc etc etc as for taking evidence to your Dr - talk to your cronies Dr G they will remind you that focus on symptoms = health...
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