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https://www.s4me.info/threads/uk-all-party-parliamentary-group-on-coronavirus-report-on-long-covid-march-2022.25079/ The ME APPG, supported by Forward ME should provide written evidence to the Lon COVID APPG.

Observations 1.Strong focus on trying to get Long Covid recognised as an occupational illness 2. there are numerous quotes included in the report, while reference is made to MCAS and POTS there is no mention of ME/CFS 3. Baroness Finlay is a member of this APPG 4. There is a call for...

@PhysiosforME might be of interest to you to see what this involves

Yes agreed just some headlines on what plans to do over the next 12 months would be useful to help me decide on allocating my donation pot for this year.

Yes @JemPD frozen med veg are my favourites they go with any type of meat, fish or beans to make something tasty. A bit of garlic passata and herbs thrown in its pretty easy to put together a one pot meal. I have a stick blender for soup too

Love your use of the signs :emoji_warning: @Hutan

Waitrose do frozen soffrito mix celery onion and carrots as a base for sauce and soup. Sainsburys also do butternut obviously the ready frozen is better value than any ready prepared fresh veg but I have also put the fresh chopped stuff into the freezer.

Waitrose do frozen butternut, celeriac

Ah ok thanks for expanding.

Ok. I don’t understand the sentence though.

PW?

And it will take a couple of weeks until you start to feel better.

I just had a simple circular flush ceiling LED.

I’m having Amtico flooring in my kitchen it has 25 year guarantee and I’m told by family member in flooring products trade it’s top quality. But it is expensive. I’ve got matt tiles in my bathroom they are easy to clean. Not that I clean them but I have wiped off splashes of shampoo. They...

:broken_heart:

:wtf:

For this particular GP it’s good for subsequent patients that she came into contact with you @Hutan Obviously big issue for medical education generally tho

@Wyva @Midnattsol they have the advantage of having someone give them good advice, you’ve done your bit, if they don’t have the sense to take notice of what you say it’s on them. Just look out for yourselves now.

is this document supposed to give covering those areas of the country where the CCGs don’t currently commission any specific services for PWME. Aren’t they going to try to push back? Should they be clear that there should be specific services in every CCG area?

1.agree DWME comms need big step improvement in quality before we could actively recommend. 2. I think it is worth making the point about specialist nurses again