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  1. M

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Assuming he's not incarcerated, as he would probably have had all phones, possessions etc taken off him and there fore be unable to tweet. Go David, enjoy a sunny day at the seaside!
  2. M

    Action for ME AGM (UK) is live streaming now

    @Sly Saint is that a microscope in your version of S4ME? I sometimes see it as a cannon!
  3. M

    BMJ Open: Effects of health and social care spending constraints on mortality in England: a time trend analysis

    I was horrified about all this SMC stuff when I started looking into it a couple of years ago
  4. M

    Action for ME AGM (UK) is live streaming now

    I have just downloaded a Stone bird summary on this history to be fully informed. It's something I'll dip into now and then. I suspect that SC now has different views on EC following Danny's diagnosis, and the LP fiasco. I don't think there is much general knowledge about biomedical research and...
  5. M

    Action for ME AGM (UK) is live streaming now

    I don't know either, but there were over 40 votes for each Trustee being elected or re-elected. I met a couple of members there, so could email them.
  6. M

    Research since January 2017

    Someone who works for GSK and has a sister who has ME, regularly attends the Invest in ME annual research conference in London. I spoke with her a couple of years ago, but do not know her name. I know this is a long shot, but maybe someone else on here does know her/IiME might be able to...
  7. M

    Action for ME AGM (UK) is live streaming now

    Ah OK. I only flicked thro the report. I got there prob halfway thro the Treasurer bit, so heard what he'd said about income and legacies.
  8. M

    Action for ME AGM (UK) is live streaming now

    Use of the rooms used for the AGM is freely provided by the business that owns/leases the building. Having the Chief Trustee, CEO and Treasurer on the platform was fine. The rest of the people attending were sitting around large tables. I don't really understand your above comment @Sly...
  9. M

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    He did say on Thurs that he would be chilling for a couple of days over the w/e, (hopefully not in a cell somewhere- my comment not his), so not to expect a report before Monday. He was around at the ME London group meeting, I don't have any more info.
  10. M

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Just popped in to TOP and Countrygirl went to the talk. She says it was very eventful and a report will be coming out, but she's been asked not to elaborate at the moment.
  11. M

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    I suggested a shirt and tie as disguise,or a wig. He said he was going to shave.
  12. M

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    I can now reveal..... that David Tuller was seen heading westwards yesterday to Paddington for a train to Exeter.....
  13. M

    Coyne: No, seats on the US Institute of Medicine advisory commitees are not for sale, despite what the Dutch Parliament was told

    Oh no Tired Sam, are you still banned? They didn't like my comment likening TOP presidential style to that of Trump, but just deleted my post, rather than me.
  14. M

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Someone important and relevant was there, but we probably won't hear from him till Monday. Having a weekend off.
  15. M

    Esther Crawley - Uni of Exeter 17th Nov Mood Disorders seminar

    Will be very interesting to hear tweets and any questions asked at this event.
  16. M

    Unrest available worldwide today on Vimeo and iTunes

    I think I'll probably aim for the Dec meeting as Weds are more tricky. Hope to see you then. Hope you and others are recovering from organising the event. It was great.
  17. M

    13 Nov 2017 | Tuller & Lubet: 'Trial By Error: The Surprising New BMJ Best Practice Guide'

    The document referred to in post #37 on the Cochrane thread still includes PDW as reviewer https://www.s4me.info/index.php?threads/6-7-nov-cochrane-wants-patients-views-in-tweetchat-to-make-2018-conference-relevant-accessible.557/page-2#post-14072
  18. M

    Unrest available worldwide today on Vimeo and iTunes

    It was an excellent film, portraying the reality of life for people with severe ME. Those who are rarely if ever seen in daily life. It was balanced with comments from US clinicians/researchers who have been involved for decades. My husband was very moved. (I knew far more about the film/the...
  19. M

    Unrest available worldwide today on Vimeo and iTunes

    Hi @Graham It was great to meet you. I recognised you from your Avatar, plus you seemed to be the only man in the organising group, and I asked Lisa at the desk! Thanks to you and other group members, so much, for organising this sell-out viewing. It was great to have the Q&A. You and Karen's...
  20. M

    Unrest available worldwide today on Vimeo and iTunes

    Hi @Binkie4 , it was great to meet you in person. I appreciate your posts to our "local" FB page. I do hope your recovery does not take too long. I agree that it was great to view it in a group setting.
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