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Norwegian ME-sufferer Marianne Grøtte has written a wish list for Christmas. Not to Santa, but to politicians. She gives some background information about the situation for ME patients and wishes earmarked funding for medical research, increased knowledge, ambulant teams in every region with...

A paywalled article from a local Norwegian newspaper about a young man (20) who has suffered from ME since he was 11. For some years he could only go to school once a week. But he managed to complete and now works as an apprentice for a big IT-company. His apprentice time is extended from 2...

Letter published today at BMJ Evidence-Based Medicine by Catherine Riva et al: Lessons learnt on transparency, scientific process and publication ethics. The short story of a long journey to get into the public domain unpublished data, methodological flaws and bias of the Cochrane HOP vaccines...

Heartening to see a tweet like this. It's from Jonas Ekström, Swedish MD and politician. It says: It feels I should devote more of my doctor time to ME/CFS. A frustrating and debilitating condition, where patients struggle to receive help

Very reassuring though to read they've used the criteria from the PACE study for inclusion..

oh dear.. Bjarte Stubhaug is a psychiatrist with a doctorate on chronic fatigue syndrome or "neurasthenia", which is the same according to him. He runs a resort in Norway with a four-day treatment plan including mindfullness, walks and classes. He doesn't distinguish ME from stress, burnout etc...

The petition got over 6 100 signatures. That's far more than I'd hoped for and a very strong signal that something is wrong with the national competence service for CFS/ME. Initiator Nina E. Steinkopf has written an extensive document about the background for this petition. It includes recent...

The article is among Nature's favourite feature stories in 2018 :thumbup:

Very nice and interesting to read this blog post about the situation for ME patients in Norway. Tuller has covered a lot and provides an up to date account of the situation. Hope the blog post will reach some of the health institutions in the country. It might be sobering to know people are...

Happy to! The Research Council of Norway has written about the pilot project in English https://www.forskningsradet.no/en/Funding/BEHOVME/1254021735078/p1254006410319?visAktive=true And there's a thread about it here from February...

It seems likely that a ward for ME patients might open in Västerbotten (North in Sweden) by next summer. For time being ME patients must travel all the way to the capitol, Stockholm in order to see a specialist in ME/CFS, so this is promising news. Folkbladet: Mottagning för ME-sjuka på gång...

Review from Book Depository: Classic Pacing for a Better Life with ME Classic Pacing for a Better Life with ME is a self-help book which explains pacing and how it can be applied to daily life. Although aimed at patients, the book can also be of interest to professionals.

Feedback submitted from Mark Vink The studies in the review do not provide any evidence that graded exercise therapy is safe, on the other hand, patient evidence and the literature show that it is not safe. Cochrane replies: The Editor in Chief is currently holding discussions with colleagues...

BMJ and Bristol's Ethics Exemptions Earlier today, I sent the following e-mail to Dr Fiona Godlee, editorial director of BMJ. I cc’d Carol Monaghan MP, Darren Jones MP, and Nicky Morgan MP. I also cc’d Teresa Allen of the Health Research Authority.

Full text available now: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms by Interfering With Host Metabolism, Gene Expression, and Immunity

:laugh: I saw that - and said to myself "Yup, 2nd november - that's today" Thanks for clearing that up, @Barry