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Article about ME in connection to the documentary tonight about RituxME and ME on Norwegian television. TV2: Emilie (18) har ligget i senge sammenhengende i ti måneder google translation: Emilie (18) has been lying in bed for ten months Includes statements from prof. Wyller who actually...

This #OMFScienceWednesday post definitely deserves its own thread :emoji_confetti_ball::emoji_clap::party: OMF creates as new Harvard ME/CFS Collaborative Research Center and expands Stanford Data Center We are proud to announce that OMF has funded $1.8 million for the establishment of a new...

Trailer for tomorrow's ME-documentary on Norwegian television. The documentary has followed some ME patients and the RituxME trial for two years. It will be aired on TV2 tomorrow at 21.40. Here is the documentary's Facebook page.

Thanks once again, @Andy for helping out. I keep forgetting that there are alternatives to google translations..

Article in the Swedish newspaper Aftonbladet about 13 year old Irma who has ME. It explains very well her isolation and the family's frustrating meeting with the health care system who lacks knowledge about the disease. Aftonbladet: Irma, 15, lever med obotliga sjukdomen: "Det är så jobbigt"...

- I’ll be damned to see another few generations of promising dancers, artists, athletes etc. being wasted merely because of politics. It needs to stop. My hope is that patients and allies will have the strength to keep telling the truth about this disease until we need to do no more. We are...

Excellent opinion piece from Sweden Metro: Agnes Arpi: Okunskapen om ME-sjuka är tragisk google translation: The ignorance about ME patients is tragic The fact that the body and the brain is connected is true, but the statement "it's in the head" is terribly misused. So many patients, meeting...

They already did :laugh:

Yes, I think it is safe to assume they might have been somewhat ... eclectic... in whom they've reached out to. :whistle:

Found it and it was a breeze! Just click here and find the location of your event on the list, click on the link and upload. They want pictures from physical events, not virtual. SmugMug City Upload Links (#MillionsMissing 2018)

The local Danish newspaper Ukeavisen Esbjerg has written several articles about a severe ME-patient who is bed bound and nursed by her parents, and whom the municipality sees fit to work and thus not in need of welfare money. Today the newspaper print a manifest made by 85 ME-patients who tell...

That was easier said than done.. I've uploaded pictures but don't know how to add them in the correct album. Is there a step-by-step-procedure somewhere? Edit to add - or an e-mail address I can send photos to so MEAction can upload themselves?

Local TV station in Stavanger, Norway with a short section about Saturday's demonstration. TV Vest: Norges største samling på ME-dagen (Norway's biggest event on the ME-day)

(Norway) Rogalands Avis: Stor markering i Stavanger på ME-dagen Big event in Stavanger on the ME-day Article is behind paywall but had several great pictures of shoes and speakers, good information about ME and the lack of care. One of the speakers were a mother of a severe ME-patient. The...

Local newspaper in Stavanger, Norway about today's MillionsMissing event. Very nice article with lots of pictures from a large shoe installation, interviews with several people including professor Saugstad who says: May 12th is the ME Awareness day. I have participated in this for several years...

The Norwegian ME Association - Oslo and Akershus county - has made a video with interviews of Norwegian ME researchers for 12th May. I hope someone is working on subtitles in English. The film contains an interview with professor Ola Saugstad about the IOM report, increased research in USA, and...

From Stavanger, Norway A great day and a great turnout! Several journalists came. Hopefully there will be some good coverage. For now the Norwegian public broadcaster has shared a photo and short description of the demonstration. NRK: Sko for myalgisk encefalomyelitt google translation: Shoes...

Merged thread Two allocations from The Norwegian ME Association to research The Norwegian ME Association celebrates 12th of May by allocating funds for two research projects into ME. The research group for ME/CFS at the cancer ward at Haukeland university hospital (prof. Olav Mella and MD...

Those who have developed the robot, AV1, just tweeted this :)