Search results

  1. Kalliope

    Cochrane ME/CFS GET review temporarily withdrawn

    Lillebeth Larun is from "Kunnskapssenteret", which only quite recently became a part of the Norwegian Institute of Public Health. It wasn't when the review got started (if I've understood this correct, that is).
  2. Kalliope

    Cochrane ME/CFS GET review temporarily withdrawn

    Article from a Norwegian news site about research, with comments from The Norwegian Institute of Public Health. Forskningno: Vil trekke tilbake ME-forskning etter kritikk google translation: Will withdraw ME research after criticism The article gives a bit background and mentions @dave30th 's...
  3. Kalliope

    News from Scandinavia

    I don't know who this is, but seems like a Swedish journalist is looking for experts/researchers on ME so thought I'd share the request here
  4. Kalliope

    Nature: The world's strongest MRI machines are pushing human imaging to new limits

    Nature: The world's strongest MRI machines are pushing human imaging to new limits Researchers look to scanners with 10.5-tesla magnets and beyond for unprecedented detail about the brain. ... Scans done with 7-T machines have also revealed more about the symptoms and progression of multiple...
  5. Kalliope

    The Triumph of Eminence-Based Medicine - Brian Hughes

    Thank you. Have also read it by now and as it includes a recap of the Guardian podcast I realised it was brand new. This was a great blog post. I can't tell how uplifting it is to see non patients following the ME debate and being able to see through the establishment and in to what's actually...
  6. Kalliope

    The Triumph of Eminence-Based Medicine - Brian Hughes

    Looks great and am looking forward to read it. Is this from today? (Can't find a date..)
  7. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    New blog post from petition initiator Nina E. Steinkopf. This time about the support to ME patients from researchers and clinicians. She has collected several quotes, from amongst others @Jonathan Edwards Fagfolk som støtter ME-pasientene google translate: Professionals who supports ME...
  8. Kalliope

    Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, 2018, van Campen, Rowe & Visser

    Coincides with their paper Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations (Peter Rowe team 2018) discussed in this thread. I was recently turned down for an assessment for POTS from my local hospital and am considering trying...
  9. Kalliope

    David F Marks: Scientific Fraud at London University

    Scientific Fraud at London University Within UL itself, there is intense rivalry between the member colleges, the Medical Schools, the Schools and departments within those colleges, research groups and units within departments, and finally, between individual academics. The white heat of...
  10. Kalliope

    Frontiers in Pediatrics: Blood volume status in ME/CFS correlates with the presence or absence of orthostatic symptoms (2018) Van Campen et al

    Frontiers in Pediatrics: Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms Introduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The...
  11. Kalliope

    Backbench Business Committee for next Parliament debate

    ETA: I wanted to share a facebook post with this video from Carol Monaghan herself, but the text disappeared. Anyways, here is what she wrote: I have presented an application to the Backbench Business Committee for a full debate in the House of Commons on the diagnosis and treatment of ME...
  12. Kalliope

    Petition against National Competence center for CFS/ME with BPS approach in Norway - anyone can sign

    New blog post from petition initiator Nina E. Steinkopf. This time she gives examples of how ME patients are talked about as a group by people with a psychosomatic/BPS approach to ME. It's quite disheartening.. She invites readers to leave comments with other examples from social media on how...
  13. Kalliope

    CFS/ME International Conference 2018 in Australia

    Should this be added to the calendar?
  14. Kalliope

    A European Research Agenda for Somatic Symptom Disorders, Bodily Distress Disorders, and Functional Disorders, 2018, van der Feltz-Cornelis et al

    Ulrik F. Malt is a red flag. He has among other co-authored some articles about ME with Lillebeth Larun (the one with the Cochrane review which might or might not be pulled) and prof. Wyller (known for a strong BPS approach).
Back
Top Bottom