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Ah, that will explain the desperate need to separate away from ME/CFS, which she no doubt views as MUS. Why does she reject a psychological explanation? No doubt had she seen her own case from the other side of the desk she would have labeled herself as psychosomatic. Awkward.

I am in agreement with much of this, medicine has passed the opportunity to give it a name by completely missing the boat and has not exactly fared well on the naming department regarding chronic illness, but the separation with other pathogens is completely arbitrary and wrong. It would be like...

As Their Numbers Grow, COVID-19 “Long Haulers” Stump Experts https://jamanetwork.com/journals/jama/fullarticle/2771111 IIRC there was a study not so long ago, maybe a few months, that looked at all possible factors and only flagged age as having an impact on the probability of chronic...

Oh it was on Reddit so anonymous is the norm. On the medicine forum talking about Afflicted, where they are very hostile to non-physicians so I would assume actual professional. I did not notice much in the way of comments that disagreed with the general tone of that. At best there was something...

Thread with some mashed-up sources of past quotes with sources.

Really adding to my growing hypothesis that all along this was an experiment gone wrong into submitting joke papers to test whether they would get through the peer review process and things just got out of hand after people found themselves flush with free cash to keep going. It reads like...

Long thread. Lots of replies. Could as well be #MEAwarenessHour for its substance. Now let's compare to how physicians typically perceive people suffering from those symptoms: Image from a Reddit thread

It's vague and all over the place. And we know this is not what is actually advised in clinical practice, making this even more confusing. And poorly written. Not super important but, still.

Well, this is not aging well. I only skimmed and wanted to find it to be adequate, but it falls short on too many points. To have a chance of making any progress, the field needs at least one paper of this scale per week. Minimum. To begin with. This is the result of 3 years of work. Maybe...

Hadn't seen this before. As expected, complete trash. Written by BACME. https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service/post-viral-fatigue-a-guide

Do these people get a discount for every 100 identical trials they run? There have literally been hundreds of identical trials of this. The substance is entirely irrelevant and this methodology would show the same results no matter what goes in there, the details of which are, of course, never...

There's been a growing message these past few weeks over how only a small minority of very old people are at risk and that's going to cause enormous problems mixed with the sewerage of ME denial and general discrimination of chronic health problems. Especially now that death rates are falling...

Covid Everlasting https://www.bloomberg.com/graphics/2020-opinion-covid-long-haulers-chronic-illness/ No big deal, just have to overturn decades of denial aggressively blocking this, involving a full reform of how medicine functions and acknowledging catastrophic negligence ongoing for...

Long Covid: 'My fatigue was like nothing I've experienced before' https://www.bbc.com/news/stories-54106272 And then people turn around and gasp at how this must be hard for mental health. Medicine is literally the biggest factor of uncertainty and despair here, by failing to work with...

‘Second Opinion,’ Episode 4: The Long-Haulers https://www.latimes.com/about/bfvpf5rbj2e-123 Rather good. First half is focused on 4 long-haulers. The 2nd half talks about autopsy findings with an expert pathologist at Mt Sinai.

The main theme over the last few years in MUS/FND/BPS has been over how to manipulate people into accepting their delusional fantasy, how to lie better and more convincingly. They know the patients see through the BS and so put all their efforts into masking the BS. Very Orwellian. So obviously...

When you find yourself having to admit that something has been used in practice for decades without there being any evidence whatsoever about whether it is of any use and see no problem with it, you have found your problem and it is the one staring back at you in a mirror. This stuff has not...

I am shocked, SHOCKED, that gambling is going on in here. Shocked!