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  1. Sean

    Cross-sectional evaluation of health resource use in patients with [FND]s referred to a tertiary neuroscience centre 2024 O'Mahony, Edwards et al

    Or setting the desired outcome to be a value of one, then picking an arbitrary number and multiplying it by its inverse. Or multiplying and/or dividing one by one an arbitrary number of times. You will, of course, always get one. QED! :grumpy:
  2. Sean

    UK:NHS: Feel Good Tennis for Long Covid

    Even if you lose you still have plenty of love.
  3. Sean

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Nath continued his intimidation and vilification campaign telling advocates that they if they continue to be critical of intramural ME study, future ME research is at risk. If the quality of the research at NIH under Nath is all they are offering us, then stopping it at least leaves us no worse...
  4. Sean

    Quotes from scientists who appreciate the support of PWME

    If you really mean that, Director Bertagnolli, then your first step must be to immediately remove Wallit from his leadership of any ME/CFS, LC, and GWI programs. Otherwise it is just more empty words from the top.
  5. Sean

    Medical students highlight the importance of medical education, kindness, compassion and belief when learning about [pwME/CFS], 2024, Muirhead

    The current younger generation of medicos, those from 1st year med school through to approx. 10 years post-grad, really need to make the effort to get up to speed with what is going wrong in their profession over this stuff, because they are the generation who will have to be apologising for and...
  6. Sean

    Persisting exercise ventilatory inefficiency in subjects recovering from COVID-19. Longitudinal data analysis 34 months post-discharge, 2024, Dorelli+

    A golden opportunity missed: According to our own @Snow Leopard, reduction in power at the ventilatory threshold on the 2nd day is the primary finding in 2-day CPET tests in ME/CFS. This study only did single tests at each time point. Still, a useful paper.
  7. Sean

    Review Inflammatory Markers in Children and Adolescents with Functional Somatic Disorders: A Systematic Review 2024 Hansen et al

    Recent findings suggest that low-grade inflammation has a role in the development and maintenance of pediatric FSDs. The findings indicate that inflammatory response may have a role in the pathophysiology of pediatric FSDs. Hence, not 'functional'.
  8. Sean

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    That would be good old fashioned convalescence, which is very much out of fashion today. Worth repeating. There is a very serious psycho-social factor in play here. But it is the damage being done by inappropriate assertion by the experts that the problem is primarily a psycho-social one...
  9. Sean

    Long COVID-19 Enigma: Unmasking the Role of Distinctive Personality Profiles as Risk Factors, 2024, Amsterdam et al.

    It's pathetic, isn't it. Just doesn't make any difference what the actual results are, somehow they always get spun into psycho-causation.
  10. Sean

    NHS England - E-learning Modules on ME/CFS

    In other words, we need to keep the focus on where it should be: the poor quality of the discredited but somehow still dominant psycho-behavioural models.
  11. Sean

    NHS England - E-learning Modules on ME/CFS

    This. We must resist the completely understandable urge to provide an alternative model to compete with the psycho-behavioural model. It is not productive and does us no favours, and we have no obligation to do so. The simple shitty reality is that very little is understood about ME/CFS and...
  12. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    And shove them down our throats. 'Twas always thus. :grumpy:
  13. Sean

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    I think it is a bad idea to have heroes, you will always be disappointed. But if I did have any then Barbara Ehrenreich would easily be one of them. If there were more people like her in this world it would be a much better place.
  14. Sean

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    This. The LP protocol is the essence of biased methodology and unfalsifiability. It is at its core fundamentally anti-science. That said, I sadly have to agree with @dave30th that he needs to acknowledge reports from patients who claim to have recovered.
  15. Sean

    Moderna’s long Covid plan

    And also want endless tax cuts. There is no grift like corporate grift.
  16. Sean

    Online: Renegade Research 'Research Roundtable', T cell dysfunction in ME/CFS seminar, May 23rd 2024

    One of Oliver Sacks' encephalitis lethargica patients in Awakenings (Leonard L. ?), who responded dramatically to L-Dopa, called it something like Resurrectine. However, like all the patients who tried the drug, he soon regressed and eventually stopped taking it. You'd think that was a...
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