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and that this relationship is stronger among cases with more severe PCC. A dose-response relationship is always good to see.

It is a waste bin diagnosis. Anything vaguely neurological-ish that they can't explain gets thrown into it.

+1 Very good article.

https://www.thecanary.co/uk/analysis/2024/05/23/lightning-process-long-covid/ Just gets worse and worse, doesn't it. :grumpy: BACME have not 'reformed' in any meaningful sense. They have rebranded and tweaked their sales pitch, and carried right on as before.

There it is.

our understanding of their mechanisms is still very limited, as well as our therapeutic efficacy for the affected patients If they still have not demonstrated adequate, reliable, and safe efficacy under strict research conditions, then they cannot be claiming effectiveness at the practical...

Sounds like, because it is. Worth repeating. This is just a turf war between the fringe and officially approved mainstream versions of pseudo-science. The underlying content is not fundamentally different.

:rofl::rofl::rofl:

Exactly. How can they advise any (specific) 'treatment' at all? It is just the rehab crew trying to keep an illegitimate finger in the pie. This is the key. I suspect that ME/CFS is not inherently progressive, if managed well. Or at least not for the vast majority of patients. But when managed...

+1

Could be sensitivity. Or could be not using the appropriate measurement technique, or not using it in the right way, for the particular problem. Using the finest microscope available is pointless if you are not looking at the appropriate tissue sample, for example.

Good point.

So when does this get sent to Cochrane? Or has that already happened, and we will just send an update at some point?

Never stopped them before. They simply reject reality and substitute their own self-serving version. And nobody is stopping them.

Gait analysis is definitely something that needs a lot more attention.

Round and round the criteria clown show goes.

Exactly. Also, a typo in your letter, near the end: We assume the research team will be wiliing

Music - keeping time, coming in on time, and hitting pitch when singing. Speech, linguistic, and also spectral, tonal, and rhythmic analysis. General ability to discriminate auditory and visual input. Memory and concentration. Coordination, accuracy, and speed of typing. Handwriting. Any...

Betteridge's Law of Headlines says no. That really is all it is. Just another performative sham to further exploit human beings.

A spokesperson for the Department for Education said: “We know some children face greater barriers to attendance, like pupils with long-term medical conditions or special educational needs and disabilities...