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Excellent.

Thank you for doing this, @andrewkq, et al. This one is important to robustly critique. Yep.

Just ridiculous, isn't it.

Because all they have is framing, so they work that to the max.

Did they control for PEM?

Good piece. The fact that it is even being published in a major (in the Australian context) mainstream media outlet is a sign of progress. The fact that it can be regarded as a noteworthy and laudable sign of progress is itself a sign of how low the bar has been set in our media.

For me average peak PEM is probably around 24 hours, ± a few hours. But can certainly go longer if severe. How much of that is decades of learning to identify and manage it, and avoid the worst of it, is another question. I would expect it to be much more variable (and hence more difficult to...

What rehabilitation? Hence, how is education going to take place? They still think it is just a management problem, and they know how to teach us to manage it.

A little bit of humility and honesty would go a long way too.

Which is why we need an in vitro test for PEM, to eliminate the risk for patients. That would be a game changer for research.

Even if an infection is cleared quickly, the reduced muscle performance remains many days longer in our experiments. This seems potentially relevant and important.

I think psych is still at the level where their diagnoses and therapies tell us more about what goes on inside their heads than in their patients.

Yidd-ish

The big plus of demonstrating the cost-to-society angle is the political leverage it brings. If the political class think mainly in budgets, then that is how we have to grab their attention. Show them how costly it is (and it is horrendously costly) to do nothing effective to deal with this...

Or worse, we will get re-classified as some form of FND, in order to completely disappear us and the whole shameful chapter from view and accountability.

It is a bit more than 'fatigue', FFS. But otherwise, definitely worth doing in principle. Loss of, or major reduction in both quantity and quality of sexual life, and all that entails, is one of the more painful and life-degrading ones.

I have no problem at all with doing everything we can to piggy back off LC in any (appropriate) way possible. We sure have earned it.

The primary endpoint was patient global impression of change (PGIC) response rate at week 12. Subjective self-report, and short term assessment for a condition well known for being long term, even chronic.

Being the underdogs, we have to be absolutely scrupulous in any of our critiques and claims, and never overstate the situation with biological findings and causal mechanisms. It sucks big time when our psychogenic opponents seem to be able to make any critique and claim they like, and never...

This alone justifies the use of economic measures, at least in Australia. You want important stuff done by the government here? Convince them how much it costs to not do it.