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PPS are viewed as awkward by educators and learners. Learners think that there is no science behind the symptoms. And the 'Learners' are correct. A case of the students being smarter and more honest than the teachers.

Research still has a vital role in the new ME/CFS/Long COVID paradigm. But it should be a different kind of research. The kind that no longer focuses on biomarkers and mechanisms. These are sure to provide “promising” but false leads and divert resources. The transparent lie of a premise here...

Psycho-tyranny. The worst psychopathology of them all.

Cochrane isn’t a government department or a public body, we are a relatively small charitable organisation. It is not possible for us to do what you are asking us to. They want the power to influence the world and our lives, in sometimes extraordinarily intrusive and potentially very...

:grumpy::grumpy::grumpy:

And trust is, by far, the single most important resource in clinical medicine. Medicine already has a big enough problem with unjustified lack of trust, and they seem hell bent on adding a mountain of justified lack of trust on top of it. That cannot end well.

When is somebody in parliament or the media going to ask the obvious question about what the hell have they been spending all that money on? Modest and not sustained 'improvement'.

I have had dry eyes and especially dry mouth since early on in my ME experience. The dry mouth is a particular issue when sleeping.

Post-Coronavirus Disease post-COVID syndrome Coz there just isn't enough acronyms. :rolleyes:

Very important thread. Thanks for starting it, @bobbler. :thumbup:

There was no clinically important difference for... ...exercise performance (6 minute walk...). There was only one result in PACE from all objective measures that was even statistically significant (6 minute walk for the GET arm), and that was also not clinically significant, and indeed still...

Is that to the pandemic itself, or to certain people's unhelpful reaction to it and attempts to manage it?

Mayo really are all over the place, aren't they. :grumpy:

Problem being that (far as I know) all other criteria are more restrictive and less inclusive, so anybody diagnosed with those other criteria are going easily meet the 1994 CDC and especially the Oxford. In which case the disingenuous can argue GET can be safely used anyway on those patients.

When outcomes are subjective, investigators should ensure wherever possible patients and outcome assessors are blinded,..." Or use objective outcome measures alongside the unblinded subjective measures. Either (or both) is fine. Neither is not.

Pride cometh before the fall. Pity they are taking patients down with them. Besides, seems to me they are more concerned with being precise (consistent) than accurate (correct), though obviously in an ideal world they would be both.

The diverse symptom presentation indicates that ME/CFS is likely to have a multifactorial origin. I don't see how that conclusion is justified.

Done. First of two this time around. :thumbup:

L-MBT focuses on increasing awareness of bodily sensations Oh FFS. I thought the problem was that we paid too much attention to our bodies? But now you are saying we don't pay enough? Make up your freaking minds. body awareness was assessed with the Multidimensional Assessment of...

Interesting.