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Superficially this is a reasonable approach. But will happen is that the failure to find a known physical cause will give licence to the functional interpretation to run free. It is a very effective political tactic. How robust are the physical assessments going to be? Will it be a panel of...

As the BPS club know very well.

From the Daily Mail article: Bald face liar. It is far more than a "group of people with chronic fatigue syndrome", as he damn well knows. Just another round of the shameless gutless misrepresentations of the facts. Coz the BPS cult got nothing else. In the bargaining phase, I see.

I think it is pretty clear that just about every finding and symptom so far in The Great ME Saga are the downstream consequences of the primary pathology, often a long way downstream. Which is why there are still no consistent findings, it cannot be well defined, and there are no clear answers...

That consent form has to have been written by either an AI bot in training, or maybe a subversive performance artiste.

Why is it still being called 'chronic fatigue syndrome'? Is that a bad sign?

This one could be useful, if done well.

:emoji_popcorn::speechless: :sneaky:

Newsflash: People with life devastating untreatable stigmatised mistreated disease are unhappy and concerned about it and the serious effects on their lives. Read all about it! Tomorrow: Dog bites man, while bears shit in the woods. Next week: Humans Need Oxygen, Water, And Food! The...

Why is pacing difficult for us? - Bio-psycho-social reasons So close, and yet...

I have no idea what is causing ME, and neither does anybody else, at this stage. But I would not be surprised if it was enteroviruses. That would tie a lot together in one bow.

NICE’s rejection of graded exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome has been challenged by many specialists. The vast majority of whom are either ignorant of the real story (possibly wilfully so), or have a serious conflict of interest in protesting the NICE...

Yep. The negative physiological response to activity, particularly the delayed component (PEM), is the core of the disease. Until it is also at the core of research and clinical practice, the decades-long failure to come up with a realistic explanation and effective treatment will continue.

How to disappear an inconvenient disease. (I actually doubt that decline is true.)

All these conditions are believed to be associated with centrally driven mechanisms such as central sensitisation. Believed by some. All studies scored moderate to high quality on the Newcastle-Ottawa scale. There was a general trend for decreased low-frequency EEG band activity (delta, theta...

Worth repeating with emphasis.

+1

Oh, the irony.

We can do better than that. More than 80% is "very low quality", with the remainder being merely "low quality". (Can't remember the exact numbers.) Hard to get much worse than that.

Grift.