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The empire must keep expanding!

and reported high levels of satisfaction regarding the program. Yes, yes, yes. But did they recover? I would report extraordinarily high levels of satisfaction from eating ice cream. But it does nothing to solve any of my health problems.

The Goldilocks theory of disease.

“the patients’ voice is important” Unless it disagrees with them. Anybody else getting the sense these guys are in the bargaining phase? Trying to salvage something, anything from their train wreck. But to strike a bargain you must have something of value to offer the other party. They got...

Studies only providing short-term follow-up data should be interpreted with caution. :speechless:

This dialogue should include a wider range of views, Yes, we certainly don't want to continue the practice of the previous several decades where one view completely dominated the whole discussion and decision making process. That would indeed be an intolerable injustice. :whistle: All they are...

Exploring the Inner Self

Clearly we must be masochists. People who want to be losers and suffer. Exactly. Somehow they are the only neutral objective honest players in the game. The only ones with a view from nowhere. Everybody else, especially their critics, are ignorant, incompetent, biased, disingenuous, and...

So much this. The multiple and manifest opportunity costs of these non-therapeutic therapies is rarely even mentioned, let alone adequately taken into account, by their advocates. I would much rather have not had to waste what little time and energy I have left to me by the disease (and now...

Sometimes it is a conspiracy. And this is one of those times.

I’ve now learnt to avoid NHS doctors in general. I’d heard of gaslighting happening to lay people but I didn’t expect it to happen to a medical professional. That there, ladies and gentlemen, is the sound of privilege being revoked. None are safe from it. None. –––––––––– Mixed feelings...

Not controlled for the placebo effect! Nor any of the other known potential biases and confounders, that often get lumped together under 'placebo effect'.

6) Provide a “before and after” record of function I think this in particular helped me with my insurance claim many years back. I was able to show a clear and sharp decline in general function after a specific date (onset). Things like the number of sick days suddenly spiking, etc.

a scarcity of evidence remains on the effects of exercise on cancer-related fatigue I can't seem to find my surprised face.

Same old, same old. :rolleyes: The brain is the control center for optimal health and drives the functioning of all systems of the body. News to me.

I agree. For many, maybe the substantial majority, of ME patients there is probably an infective trigger, and probably a viral one. But I see no evidence at this stage that this is a necessary and defining component of the onset process, nor of the chronicity of ME. It might be, and we are...

Probably apocryphal, but a winner of a science Nobel prize was asked how they got the right answer, and they replied: You don't get a Nobel prize for getting the right answer, you get it for asking the right question.

The decades long persistence of the deconditioning claim is going to go down as one of the most unscientific and disturbing in modern mainstream medicine. A classic example of how people, even the most trained, resourced, and 'expert' of people, managed to completely fail to actually test...

I appreciate the efforts of those within Cochrane trying to move this forward, and in the right direction. But if Cochrane the institution are having so much internal trouble resolving this – which they indisputably are – then the minimum position they can reasonably take is to temporarily...

There is the critical and longstanding issue of how accurate and comprehensive the medical records are, i.e. GIGO. But in principle it has serious potential, on efficiency grounds alone.