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  1. Sean

    BBC journalist has reached out asking for more info on ME patient abuse claims

    As best I can recall without checking, Wessely did not sign the actual sectioning papers for Ean, but he did submit an expert witness statement to the court supporting it. So he has some responsibility for the outcome.
  2. Sean

    News from Australia

    This is pretty good. Written by Hayley Gleeson. https://www.abc.net.au/news/2024-06-16/children-with-long-covid-dismissed-doctors-myth-virus-harmless/103959078
  3. Sean

    2025-2026 Norwegian chronic fatigue guidelines - draft published

    This is the core message at this point in time, and likely to remain so for some time to come.
  4. Sean

    United Kingdom 2024: Online workshops on ME/CFS Research

    What is required is that they are reasonably accurate at recording changes and trends for the individual. It is the variations that seem most important here, though the absolute values do matter as well.
  5. Sean

    USA: The RECOVER Initiative - Long Covid research

    Yes, fine words. But we have heard it all before. So let's wait and see how well those promises translate into meaningful productive actions and results.
  6. Sean

    Chris Armstrong - Melbourne ME/CFS researcher, research updates and general chat

    @MelbME Nothing to add to the conversation, others have covered it. Just wanted to say a big thanks for engaging here and listening. We don't expect or want to be in charge of research decisions, to be given veto or anything like that. That is what the pros get paid to do. But we do...
  7. Sean

    : TV casting call for people living with ME/CFS

    Never existed. Was always nothing more than a sop for public relations purposes. Caused some offence?!? Standard non-apology. It is a lot worse than mere "some offence".
  8. Sean

    Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+

    Sounds to me like what they are really saying is that it is everybody else who is inconvenienced and embarrassed by these seizures. So patients should have the decency to do it alone, on their own time.
  9. Sean

    Acute blood biomarker profiles predict cognitive deficits 6 and 12 months after COVID-19 hospitalization, 2023, Taquet et al

    Interesting how Garner and Carson can deliver robust critiques of biologically based studies, but seem blind to the serious flaws in their own studies and claims.
  10. Sean

    Guillain Barre Syndrome

    :( All the best to your dad and family, Snowy.
  11. Sean

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    I have learned the hard way over the decades that every time I think I might be going a little too hard on the ME-is-psychosomatic crowd they soon prove me completely wrong. They really are that bad. They really are a virulent cult. It is now beyond any possible dispute that the medical...
  12. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    Doctors have to say we don't know, we got nothing. Equally patients have to hear and accept it. And not just patients, but also their families, friends, our political overlords, etc.
  13. Sean

    Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+

    The finding that avoidance behaviour mediated change in several outcomes supported our theoretical fear-avoidance model on which DS-CBT was partly based It does no such thing. That avoidance behaviour may well be justified. Is staying away from the edge of a cliff a pathological avoidance...
  14. Sean

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    That is stark indeed, especially the final chart that clearly shows that, if anything, patients were playing a better strategy than the healthy controls. Which hardly supports the patients are misinterpreting/incompetent/imagining/delusional/whatever view. It is also dangerously close to...
  15. Sean

    Opinion Vocational rehabilitation for Long Covid: a roadmap for recovery, 2024, Parkin et al.

    Yep. Every time I have tried to explain PEM to somebody in the health system their eyes glaze over, and it is abundantly clear they don't even start to get it, and most don't want to, and attempting to push the issue is only going to further impair our already fraught working relationship. So I...
  16. Sean

    'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths]

    I was at uni during the time when post-modernism was the Latest Big Thing. It was a disturbing lesson in how gullible and faddish the intellectual elites can be. - There is no such thing as objective truth. - Is that an objective truth? - *crickets*
  17. Sean

    : TV casting call for people living with ME/CFS

    I believe the correct term is 'bang stick'.
  18. Sean

    Illness perceptions, experiences of stigma and engagement in (FND): exploring the role of multidisciplinary group education sessions 2024 Butler et al

    Free-text analysis revealed stress and trauma as the most common causal attributions, Was that before or after they had those casual attributions suggested to them? There were no significant changes in stigma, distress, sense of control or anticipated discrimination. So, a null result, then?
  19. Sean

    ETUDE: Encompassing Training in fUnctional Disorders across Europe

    "An etude is a short, tricky tune that a musician plays mainly for practice or to demonstrate skill."
  20. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line, IMO.
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