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  1. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But they were identifiable and enough data was available to compare those who did cross-over with those who didn't, and there was no difference, meaning adding GET or...
  2. Sean

    BBC: How Long Concussion could offer new insights into Long Covid

    That is exactly what they have done.
  3. Sean

    Modern environmental factors

    For me the big indisputable weather correlation is humid heat. Dry heat, within reason, is manageable. But when it gets humid (above ≈50%) as well as hot, the going gets very rough. Tropical summer, especially the pre-monsoon build-up, is bad enough for healthy people, but it is a lot tougher...
  4. Sean

    Esther Crawley

    Now that is interesting. Yep, as long predicted here, they are doing a bait and switch, simply swapping ME/CFS for another, more psychosomatic-friendly, diagnostic label to keep us under their control. They really do think they own us, and nobody, not even the highest levels of their own...
  5. Sean

    News from Australia

    a completely new disease Yeah, nah.
  6. Sean

    BBC: How Long Concussion could offer new insights into Long Covid

    They do love strawman excuses. In fairness, they don't have much else. Certainly not solid evidence.
  7. Sean

    UK: University College London hospitals (NHS)

    But they have the 'resources' to continue right on imposing the old psycho-behavioural regime. They can't even come up with half decent excuses. Or just couldn't but bothered to.
  8. Sean

    News from the USA, United States of America

    And the evidence for this is...?
  9. Sean

    Preprint Persistent symptoms and clinical findings in adults with post-acute sequelae of COVID-19... in the second year after acute infection

    I think the long-term follow-up results for PACE, especially the slopes of the curves at that point, suggest this interpretation is correct.
  10. Sean

    Preprint Persistent symptoms and clinical findings in adults with post-acute sequelae of COVID-19... in the second year after acute infection

    One possible alternative interpretation is that receiving 'expert rehabilitation management' was actually a hindrance to natural recovery. IOW, that patients were better figuring it out for themselves than having an authority figure imposing an arbitrary rehabilitative framework on them.
  11. Sean

    A systematic mapping review of clinical guidelines for the management of fatigue in long-term physical health conditions, 2024, Mulligan et al

    Arguably, in one critical way, it has regressed with the general abandonment, or at least diminution and downgrading, of the concept and practice of convalescence. I shudder to think how many long-term ME/CFS patients would have been a whole lot better off, and on a sustained basis, if they had...
  12. Sean

    Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders, 2024, Reinsberger et al

    Yep, this is just part of a propaganda blitz of the formal literature, ostensibly from different individuals and groups to give the appearance of independence and consensus. See also the recent advice on exercise by the Royal College of GPs in Australia. Written by [drum roll] Paul Glasziou, he...
  13. Sean

    Webinar 4th June 2024: Royal College of Physicians Edinburgh RCPE: ME/CFS and Long COVID

    Key points: PEM is NOT "fatigue after exertion" Pacing is NOT typical quota-contingent (goal driven) approach How is it that these relative latecomers to the game can get it so easily and quickly, and express it so succinctly and clearly, yet so many of the supposedly world leading CFS experts...
  14. Sean

    [Thought experiment] In a random cohort of 100 ME/CFS patients (recent diagnosis via CCC), what can you know about them with 90%+ certainty?

    Always said pem, as in pen, just swap the n for an m. Keeping it short and simple is what acronyms are for, I thought. I don't have the time or energy to spell it out every time, let alone say the full term.
  15. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Yeah, why is it that when subjective and objective disagree, the subjective are preferred? Surely when there is a discrepancy between them the goal is to get them synced up?
  16. Sean

    Integrated care model for patients with functional somatic symptom disorder ..., 2024, Röhricht

    The importance of... empathic... communication You can't teach empathy. According to the findings of this study, treatment options included in a portfolio for an integrated service, delivered by a multidisciplinary group of health care professionals and for patient’s choice: self-help...
  17. Sean

    The economist: Many mental health conditions have bodily triggers

    I don't disagree with that. My point was more that the profession could actually be doing a lot more good for anxiety and depression in particular if they focussed less on 'fixing' the alleged psycho-behavioural (and 'moral'), um, deficiencies in the individual, and more on changing or at least...
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