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from the nhs page, my bolding That is rather sly. Based on the fact that a dx of somatisation/bodily distress disorder etc is dependant on being (in the Dr's opinion) overly distressed or emotionally affected by your symptoms, it seems rather underhand to make a point of advising people to tell...

No, and it risks tremendous harm to the vast majority of ME patients in the UK and elsewhere, who all have CFS on their records, many of us having had some bright spark GP change it from ME to CFS on our records, because they dont like the ME term (no proven brain/spinal inflammation etc) -...

her tweet & insistance in separating the too is really not helpful. as usual

her tweet & insistance in separating the too is really not helpful. as usual

Thanks @Jonathan Edwards thats clearer

Wow reading that it feels almost like the NHS page rewrite is a passive aggressive pout. But i was under the impression the NHS England rep at the RT was supportive? Have i got that wrong @Jonathan Edwards ? Perhaps you cant say because of the Chatham house thing, but there seems, like with the...

@Sean @friendtofronds yes exactly thank you! :) good to know what page it's from too @Arvo that'd be awesome thanks :) I finally found them under trial info ETA just seen other responses too.... fantastic thanks so much @Andy @JohnTheJack computer dying have bookmarked will check out later

Thanks for that, but i cant even find the manuals in among all that, it's too much information. My brain cant sift through & select for some reason, i think thats why i find it hard to find posts in threads. Hopefully someone will link to the actual quote. I have an idea that @Barry posted it...

Sorry if this is off topic, but somewhere on this thread (i think) there are some quotes from the PACE trial therapists manuals on GET/CBT, but i've spent all my available strenght trying to find them. I need them for something & hoping the poster, or indeed anyone else, might see this & be able...

Brilliant as always thank you @dave30th @rvallee comment underneath... my bolding "a lasagne of madness"!!! :laugh::laugh::laugh:

crikey. wish i lived in Bolton

mic drop brilliant thank you.

Well... perhaps they would all have to start being re-written to make them properly evidence based, as well.

it's the immune response Dom see here Vaccine side effects: My experience of them and what they mean - BBC News You're fortunate those symptoms only lasted 8hrs, mine lasted over a wk. although the high fever did go down after 3 days. ETA everyone i know offline (so at least 6 people, had...

Exactly. I repeated that comment to my carer this morning, & she looked completely non plussed.... "but thats the whole point, ME isnt like other illnesses where they can do exercise without it doing any harm"

Re White's letter... Even if it were true that physios helped people with every other illness known to man, through some kind of exercise programme... it wouldnt be 'odd' if it didnt help people with an illness characterised by worsening after any form of exertion beyond a certain threshold...

Well Amen to that! could not agree more

i meant waiting up the whole day - meaning i spend most of it in bed. If well rested i can schedule to be downstairs on the settee between say 2&5pm, but being down there all day is impossible. Its disgraceful that they think it's ok to not even give you a date. Turning up announced & unplanned...

agree with all you say @livinglighter

Both the above issues imo, is due to the fact that humans always go into 'pattern matching' mode when they hear information. They try to find an experience that they are familiar with, that they've experienced or that they know about already, a box they can put what's being desrcibed, into. So...