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  1. rvallee

    USA: Mount Sinai PACS clinic and Dr David Putrino

    I hear that so much out of MDs, how they find it frustrating to deal with us because there's nothing they can do to help. Which is really puzzling, since there must be thousands of conditions for which there's nothing they can do to help. Most of those aren't as bad as us, in fact most are...
  2. rvallee

    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    All of this is a direct consequence of medicine's denial. None of this should be a surprise to anyone, you can't deny major illnesses like this without causing havok. Literally every problem here isn't just medicine's responsibility, buts its creation and perpetuation. But I'm really confused...
  3. rvallee

    Rheumatism and chronic fatigue, the two facets of post-chikungunya disease: the TELECHIK cohort study on Reunion island, 2018, Gérardin et al

    Not many threads on Chikungunya, but this could be relevant. And the implications of this strategy are actually pretty significant, as there is no current method to detect cell-to-cell transfer, and we have remained stuck in the old "can't find the virus in the blood = no more virus" paradigm...
  4. rvallee

    Forbes: Public Pushes Back On CDC’s Plan To Weaken Infection Control

    It probably made sense from the comfort of a lab and public health models. Reality simply has a way of asserting itself that doesn't care much about those models, how people and politics end up driving everything in the end. No model could have predicted that medicine would end up basically...
  5. rvallee

    Unravelling the influence of affective stimulation on functional neurological symptoms: A pilot experiment examining potential mechanisms 2023, Pick

    Honestly, the Stanford prison experiment wasn't all that bad when you look at what psychology has become. At least just as legitimate. Definitely not the least bit more serious. They might as well try proving that people falling to the ground have always wanted to trip. After having been tripped...
  6. rvallee

    Long Covid in the media and social media 2023

    Red blood cells deformation is making a comeback, uh? It's really incredible how almost everything ME/CFS has been replicated with LC. Just not as a unique snowflake that applies to everyone and remains stable in time. A shift as significant as having to use high resolution video where usually a...
  7. rvallee

    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    And they'll keep saying so anyway. It's been their model from the start, and these people have shown a consistent pattern over decades of not caring one bit about evidence. That's why they started with assumptions devoid of any evidence. Many other awful researchers have started doing the same...
  8. rvallee

    Forbes: Public Pushes Back On CDC’s Plan To Weaken Infection Control

    Somehow, it's so bad it actually reminds me of the TV series V, about alien reptiles replacing human beings, and so many humans siding with the alien reptiles. It's a common trope, not just this series. I never thought humans could actually side with a virus, do everything to maximize its...
  9. rvallee

    Long Covid in the media and social media 2023

    Many good replies already, but if you can think of any, this could be useful. Davis is a prominent voice in the LC community and has the hear of many researchers.
  10. rvallee

    Lightning Process - discussion thread

    He has a PhD? WTH? And it's not even a joke university, apparently. Or, I guess maybe it is. His thesis (https://repository.londonmet.ac.uk/5221/1/Parker%2CPhil_Thesis.pdf) appears to be on something like the LP, called The Rediscovery Process instead, for substance use disorder. And it is...
  11. rvallee

    Study on Sports, Extracurricular Activities, Electronic Device Usage Factors Associated with CFS in Taiwanese Preschoolers 2023 Huang and Duan

    They don't have a damn clue what CFS is. They looked at a box that said "fatigue" and looked no further. I don't even get how this happens not just at all, but routinely, in what is supposed to be a serious profession. It's basically the professional version of doing a report on "youth in...
  12. rvallee

    Symptom profiles and their risk factors in patients with post-COVID-19 condition: a Dutch longitudinal cohort study.

    The sub-types are not cleanly separated, though. So they are more like sets of possible outcomes that aren't mutually exclusive. Like how car injuries don't have types of injuries that are mutually exclusive with falling from on high, or sports injuries. The obsession with cleanly separating...
  13. rvallee

    Trial Report The novel application of the Lightning Process to treat Long Covid in primary care - case report, 2023, Finch, Parker et al

    Good point: Somehow I doubt it makes much difference whenever GPs are being sold this BS in some official context where other GPs are gushing over it, but it actually shows just how easily doctors will peddle pseudoscience when they feel like it, and they can get away with it. It can't really...
  14. rvallee

    All-or-Nothing Behavior and Catastrophic Thinking Predict Fatigue in Inflammatory Bowel Disease: A Prospective Cohort Study 2023 Moulton Chalder et al

    In a sense, they want delusional thinking, or think that it would work best. They want people suffering from an illness to be in denial about their illness and its impacts. It makes zero sense, and reminds me more of poverty piety in some religion, in trying to glorify destitution as some test...
  15. rvallee

    Artificial intelligence in medicine and science

    Assessing the Utility of ChatGPT Throughout the Entire Clinical Workflow: Development and Usability Study https://www.jmir.org/2023/1/e48659 Methods We inputted all 36 published clinical vignettes from the Merck Sharpe & Dohme (MSD) Clinical Manual into ChatGPT and compared its accuracy on...
  16. rvallee

    Investigating the factors associated with meaningful improvement on the SF-36-PFS ... young people, 2023, Crawley et al

    Aside from being a superficial and mediocre study, published 8 years after it ended, this would then dispute all their claims about behavioral stuff, or whatever. But of course their conclusion is always the same: give us more money so we can waste it doing the same useless nonsense we've been...
  17. rvallee

    All-or-Nothing Behavior and Catastrophic Thinking Predict Fatigue in Inflammatory Bowel Disease: A Prospective Cohort Study 2023 Moulton Chalder et al

    They're using "predict" out of correlational data that is mostly arbitrary labeling. They decide to frame this as "all or nothing" or "catastrophizing", it's not a thing in itself. They're simply moralizing out of observations that are banal in themselves. Disabled people have limited energy...
  18. rvallee

    Parity of esteem within the biopsychosocial model: is psychiatry still a psychological profession?

    Good example of two wrongs being added up to make a right. Neither are any good, the problem is clearly with how things are evaluated, that they can find that something useless is "superior" to another useless thing, and back again. Without ever thinking that there's anything wrong with using...
  19. rvallee

    Parity of esteem within the biopsychosocial model: is psychiatry still a psychological profession?

    I was told that not doing harm was kinda important in medicine... especially that helping a few is not a valid excuse for harming others. Which is clearly happening here, because the system of healthcare is fully self-contained. When those within the system know of harm and do nothing, there is...
  20. rvallee

    Ed Yong Articles on Long Covid & ME/CFS

    Uhhh, they do not. It has been distorted, misrepresented and maligned for a long time. Still is. But there is no medical understanding of the mechanisms of fatigue. And ME/CFS is not fatigue, and neither is PEM. Fatigue is a multi-system, a whole organism, issue, there is no specialty of...
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