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  1. rvallee

    Reanalysis of STAR*D trial (PACE-like outcome switching scandal)

    Oof. It looks exactly as bad as PACE. Seriously, this is standard operating practice and it's why we're getting nowhere denouncing it for us. They need to cheat to produce fake outcomes: I have a feeling that anyone looking closely enough would find even more issues with it. And likely the...
  2. rvallee

    UK: NHS East London: Medically Unexplained Symptoms/ Bodily Distress Disorder Service

    It's appalling that something that should be in the DSM wound up in the ICD. It has no place at all there, and neither should any notion of any form of distress like this. The description of "clearly" is patently absurd, it's an arbitrary judgment made out of nothing at all. And sadly there is...
  3. rvallee

    Reanalysis of STAR*D trial (PACE-like outcome switching scandal)

    At this point, it's probably guaranteed that this is accepted standard practice. And explains the mass indifference to doing the same thing with PACE. If they don't cheat, they have nothing. So they always do. The psychiatric discipline produces almost no effective outcomes outside of sedating...
  4. rvallee

    Functional Neurological Symptom Disorder: A Continuing Conundrum for the Perioperative Physician, 2023, Chin and Kumaraswami

    Aside from how bleak and morally bankrupt this looks to me, it's so disappointing how medicine misses out on so many opportunities (most of them? all of them?) to learn about how the human body works, and instead defaults to trying to avoid blame for their own failures. In this case it even...
  5. rvallee

    SARS-CoV-2 Reinfections and Long COVID in the Post-Omicron Phase of the Pandemic 2023, Boufidou et al

    Post-Omicron? Uh, well, all current variants are still considered Omicron. They've evolved a lot so they're not, but because it's all managed as a PR thing they don't use new names anymore, seriously holding on to the belief that naming things accurately is scary. I see a lot of important MDs...
  6. rvallee

    UK: NHS East London: Medically Unexplained Symptoms/ Bodily Distress Disorder Service

    It's technically true that they have been developed and evaluated. They have also been found to be useless at it, especially as all the evidence insists that it's about coping/managing, so there can be no actual language pretending there is evidence for treating symptoms. But of course in...
  7. rvallee

    UK Government ME/CFS Delivery Plan consultation

    Only the new ones tend to fall for it. It doesn't take long to see the naked wizard behind the scene, but at this point patients are seen as discredited, their opinions as worthless as our own. There is an endless stream of new patients. Unfortunately, this is being exploited, possibly...
  8. rvallee

    Parity of esteem within the biopsychosocial model: is psychiatry still a psychological profession?

    But all the esteem they currently have was demanded and handed to them without being earned. They don't know of any other way to do this.
  9. rvallee

    Parity of esteem within the biopsychosocial model: is psychiatry still a psychological profession?

    This is simply false. It's still heavily promoted far above any merit it ever had, and Long Covid has massively amplified its clinical use. They just want more of it, but without actually proving any merit. This nonsense needs to end.
  10. rvallee

    Parity of esteem within the biopsychosocial model: is psychiatry still a psychological profession?

    There should be parity of esteem between scientific medicine and biopsychosocial medicine in the same way as there should be between astrology and astronomy. Equating a set of vague, generic ideas that mostly amount to a belief system with a rigorous system of science is patently absurd. Of...
  11. rvallee

    Hypothesis The viral origin of myalgic encephalomyelitis/chronic fatigue syndrome, 2023, Maureen R. Hanson

    They're working on it. Probably having difficulty sourcing tissue, what with the complete lack of support from healthcare systems over this.
  12. rvallee

    Trial Report eLearning improves allied health professionals' knowledge and confidence to manage medically unexplained chronic fatigue states: A RCT, 2023, Sandler

    You can't evaluate knowledge when you don't have knowledge. They are medically unexplained, thus as medical professionals they have no knowledge of them. This is literally what defines them, the actual definition. We are in the age of AI and machine learning, FFS, where this is a very big deal...
  13. rvallee

    Longterm course of neuropsychological symptoms and ME/CFS after SARS-CoV-2-infection: a prospective registry study 2023 Reuken et al

    LC has shown this without any possible doubt. It's still very disruptive, and medicine still needs to get serious about recognizing reality, that this isn't something people can 'negotiate' or push through. After all, most would actually say that the recovery rates are about there, so it...
  14. rvallee

    Longterm course of neuropsychological symptoms and ME/CFS after SARS-CoV-2-infection: a prospective registry study 2023 Reuken et al

    There is zero reason to make a distinction between the illness at 3 months, 6 months or 9 months, anymore than there is to do the same for mono, or a staph infection, pneumonia, or anything else. Same with a broken bone or a stroke causing injury. It's the same illness. The fear of labeling is...
  15. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    I mentioned Jonathan Toews (pronounced "taves", if you're unsure) a few times before, pro hockey player in the NHL, who has been struggling with what appears to be Long Covid. He was a star player, with some good years left if he was healthy. It's pretty frustrating how the doctors made up this...
  16. rvallee

    Trial Report Home-based testing protocol to measure physiological responses to everyday activities in ME: a feasibility study, 2023, Clague-Baker et al

    Stress can be perfectly substituted with exertion in almost all cases. So this works, and it's commonly used this way in many academic and clinical literature. It can always be poorly interpreted, but it works perfectly here. This is why fun things lead to the same. In fact in pretty much all...
  17. rvallee

    Trial Report Home-based testing protocol to measure physiological responses to everyday activities in ME: a feasibility study, 2023, Clague-Baker et al

    It's honestly ridiculous how much my pulse rises up simply writing on my keyboard. My position hardly changes. My hands and arms are rested. The cognitive effort alone can give me a rise of 20 BPMs easily. This needs to be tested, it can be objectively quantified. There will be variations...
  18. rvallee

    Review A Scoping Review of Pacing for Management of [ME/CFS]: Lessons Learned for the Long COVID Pandemic, 2023, Sanal-Hayes et al

    Oh, studies and reviews are OK. My disagreement was specifically over clinical trials. There is not only no need for clinical trials, they are actively harmful when it comes to us. Because most of them will be run by people who have a distorted perception of what PEM is, will be heavily biased...
  19. rvallee

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Weird comment. There is far worse coming out of, well, everywhere in medicine. The official model is just as bad, and I've never seen this doc criticize it in any way. She is extremely committed to keeping a full separation between LC and ME. She is just as damaging, if not more, IMO.
  20. rvallee

    Covid-19 vaccines and vaccinations

    Gotta love how the whole messaging over the last year has been that it's now completely safe, "back to normal", because everyone is vaccinated and everyone can get treated if they get severely ill. It's the same message everywhere I see. Well, in rich countries anyway. The rest of the world...
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