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    United Kingdom: Science Media Centre (including Fiona Fox)

    yup. it's well-known among journalists
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    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Exactly. The previous year Crawley did not get two huge grants as well, and her bogus LP study had also become an embarrassment, perhaps, as well as all her other public antics.
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    United Kingdom: Science Media Centre (including Fiona Fox)

    True, but it is also a struggle between those who believe in proper science and those who don't. Fox is calling for defense of this body of evidence. The body of evidence does not deserve any legitimate scientific defense. She's got her plot points mixed up.
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    United Kingdom: Science Media Centre (including Fiona Fox)

    strange--on the UK site I can see that a kindle is available, but does not show up as an option for me. I guess the kindle rights in US are different.
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    United Kingdom: Science Media Centre (including Fiona Fox)

    I can't find an e-edition on the amazon page. Is Fiona's book only in hardcover?
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    United Kingdom: Science Media Centre (including Fiona Fox)

    Is Wessely going to weigh in and complain about her making Holocaust references, as he has when patients make Nazi analogies?
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    Classification of Functional Movement Disorders with Resting State fMRI, 2022, Hallett, Horovitz et al

    Jo, this is an incisive analysis. The only problem is the FND folks skip #2 in the public presentation of their ideas.
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    USA: Mount Sinai PACS clinic and Dr David Putrino

    This was the first time I'd spoken with Putrino. He really just kind of emanates compassion and concern for patients--at least that was my impression. If I were sick, I felt I'd be comfortable with him looking out for me.
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    It might coincide or overlap--but Kennedy is an anti-vaxxer from the left, not the right. that's a big difference. I don't know that your assumption about his audience is warranted. You're right about attitudes toward long Covid online, but I don't share your belief that these are Kennedy's...
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    What's the basis of this assumption about Kennedy's audience? I think anything that gives him credibility is problematic.
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    they kept stating that people misunderstood what they meant by CBT and GET, which was ridiculous, and they knew it. No one misunderstood. They were just not willing to act responsibly, admit their errors and apologize for having made such a mistake. I thought their behavior was disgraceful.
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    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    This has always bothered me. They are the lead public health agency in the US. They promoted and cited PACE, and then they didn't. I asked multiple times for a comment from Unger or someone about PACE and they refused. That's a complete abrogation of their responsibility as public health...
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    MElivet - Blog posts by Nina E. Steinkopf

    I think Vogt conceived of himself as a patient. He said he cured himself of tinnitus.
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    Is ME a metabolic problem or a signalling problem?

    what does this mean exactly?
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    Circadian rhythm disruption in [ME/CFS]: Implications for the post-acute sequelae of COVID-19, 2022, McCarthy

    Jo, I'm sure you've discussed this before but I can't remember where or when. Beyond the brain, what's your take on the idea of mitochondrial dysfunction/broken ATP-cycle/etc?
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    Is ME a metabolic problem or a signalling problem?

    Posts copied from this thread Jo, I'm sure you've discussed this before but I can't remember where or when. Beyond the brain, what's your take on the idea of mitochondrial dysfunction/broken ATP-cycle/etc?
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    YouTube videos: David Tuller on Tub Talks With Damon discussing ME/CFS and Long Covid, 2022,2024

    Ha! I did the tub interview a month ago, and Damon just posted it. Maybe he timed it to give me a final boost!
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