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    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    Some of the language reflects understandings of things almost 20 years ago and I think it was absolutely a mistake for her to frame it as "graded exercise." It's only graded up to the point where someone feels symptoms. There is no suggestion that this is about "recovery." Now, I understand that...
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    Patient experiences and the psychosocial benefits of group aquatic exercise to reduce symptoms of ME/CFS: a pilot study, 2020, Broadbent et al

    I met Karen Wallman when I was in Perth two years ago. It's really not "graded exercise" as we know it, and I don't think it should have been in the Cochrane reviews. She explicitly did not want anyone to "push through" or ignore symptoms. The goal was to find out if there were benefits to be...
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    Article: Fighting over Fatigue (republished: originally published 2015)

    this is an unfortunate habit of some sites.
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    Article: Fighting over Fatigue (republished: originally published 2015)

    yes I remember that one. I'm pretty sure I talked to her. It was posted on something called Mosaic, which had some complicated relationship to Medium.
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    Trial By Error: CBT and Irritable Bowel Syndrome

    thanks. I'll look into it. If anyone has cross-membership and knows these groups, let me know!
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    Trial By Error: CBT and Irritable Bowel Syndrome

    I haven't, no. Does anyone know anyone at those organizations?
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    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    Yes, people can send checks made out to my center. Maybe I should add that information. If they send the checks to me directly but make them out to Center for Global Public Health, UC Berkeley, I can make sure they are delivered to the right office once we can move around again. Checks send to...
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    Trial By Error: A Post About Lupus and MUS, Not COVID

    so did you get a lupus diagnosis? And you also have a CFS or ME diagnosis?
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Are you referring to the courage of parsing the paper or the courage of submitting to the peer-review process? That to me is equally a void.
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Steve Lubet of Northwestern University and i wrote a response to Sharpe/Greco. It has been through two rounds of peer review and was finally accepted for publication yesterday. It should be out within 3-4 weeks.
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    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    Hi, yes--funding my job is the same as funding the project. My Berkeley job is to conduct the Trial By Error investigation, even though I publish it on the website of a Columbia colleague. I started it as a side project when I had other Berkeley responsibilities. When that funding ran out, I...
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    Chronic fatigue syndrome: progress and possibilities, 2020, Sandler and Lloyd

    When I was in Australia, I found people (patients and the main ME doctors) making a very sharp distinction between post-viral fatigue syndrome and what they called chronic fatigue syndrome or more often "chronic fatigue" but that would be called ME in the UK. At least, it was a much sharper...
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    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    yes, this is what's supposed to happen but for a couple of people it didn't--one other person besides Wonko had the same thing happen. --Berkeley is trying to figure out where the glitch is and fix it. Of course, anyone who over-donated will get reimbursed--either by the system or by me...
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    Crowdfunding: Trial By Error: [David Tuller] Reporting on ME, CFS, "medically unexplained symptoms," and related stuff, 2020

    Of course, I will refund any money personally if it comes to that. The $10 button was added specifically at my request. I don't have access to the back workings but I will alert the administrator. It went up automatically at midnight in California, so I assume any issues won't get taken care of...
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    Interventions to treat pain in paediatric CFS/ME: a systematic review - Crawley et al Jan 2020

    I'll take a look. soon I can get back to some regular blogging I think. it feels like everything publicly discussed has to involve coronavirus at the moment.
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    NICE ME/CFS draft guideline - publication dates and delays 2020

    yes, I was thinking about this. Like the CBT program for IBS I've been writing about. Now they can say, and this is even better given the coronavirus era. It is a bit worrisome.
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    Association Between Low Back Pain and Biomedical Beliefs in Academics of Physiotherapy, 2020, Gomes et al

    i just don't really get the concept of something, much less back pain, being a "risk factor" for having biomedical beliefs. and that biomedical beliefs are I guess defined as bad. it's very perverse.
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    UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and 11th March 2020

    I decided not to go. I'm really disappointed not to be there, but I was concerned about getting entangled in international travel restrictions/cancellations and geographic lockdowns and not being able to get back to US. Berkeley has cancelled on-campus classes and moved them all online at least...
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