Search results

And presumably he would still believe or at least claim that PACE is "a thing of beauty."

I understand why it was hard to understand. I can see why it would be confusing unless you understand what the IAPT program is doing. I could have explained more. The program started off in 2008 to embed psychological services more closely into health care delivery, so that it was easier for GPs...

Not to defend the investigators or anything, but I assume the CBT for depression in advanced cancer is different from the aberration of CBT addressing unhelpful illness beliefs that is used for "CFS" or what others would call "ME." I don't think the presumption is that the depression is an...

Hi, I don't quite get the confusion. IAPT says it's effective for treating people with depression/anxiety as co-morbidities to long-term conditions, including advanced cancer, and MUS, as in chronic fatigue syndrome. In this study at least, IAPT has been shown to not be effective in improving...

Ha, this drove me nuts when I was there. Patients, clinicians, researchers--everyone called it "chronic fatigue." "Syndrome" was almost never used, ME was almost never used, ME/CFS pretty rarely.

In other words, you're saying that the fact of there being 100 possible models is what suggests none of them are on target because the volume of ideas would indicate they're all shots in the dark?

He takes an absolutist position that only those diagnosed through criteria he approves of can use the term ME.

where did he make this point?

@Gaspard, your perspective is very helpful. thanks for sharing it.

I would agree with this. The analogy has broken down in their own terms, but it breaks down on other levels also.

This is a good point.

I don't think it implies that all of them have. I suppose someone could read it that way. To me, it implies that as a general rule these disciplines and specialists have taken that position. I think that's defensible, given the DSM and all that. I don't really understand your second point. They...

I saw that about McGregor, but I've never seen a footnote linked to a name on a list, and if Hornig was a co-author of the other thing it would be consistent. It's a bit weird. Anyway.

I wouldn't be too hard on them. Many have suffered major abuse just like ME patients.

There should be a term for "neurological symptoms that we cannot diagnose at this point," and "functional neurological disorder" is theoretically as good a phrase as any, just like "medically unexplained symptoms" would be fine if it weren't misused to mean "medically unexplainable symptoms."...

Yes but does anyone get why footnote #4 and #5 are by Hornig's and McGregor's names, respectively?

I'm going to post it on VB.

I'd never heard of Richard Sykes. Here's another article, specifically about CFS: https://doi.org/10.1192/apt.8.5.351 This is his bio: Richard Sykes is the Director of Westcare UK (155 Whiteladies Road, Clifton, Bristol BS8 2RF, UK), a registered charity for people with chronic fatigue...

thanks! would love to see if you find. or I'll look. don't stress out about it. Added: Found it. https://philpapers.org/rec/SYKMUS

This can be true but they are also invaluable and are fascinating to read. I have read a lot of them over the years, including before I wrote anything about PACE, and have found a lot of useful information. Magical Medicine really captures what happened in PACE, but it is true there is a lot to...