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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    I have tried repeatedly to get a copy of the letters. Bristol says they don't have them and the clinic in Bath should have them. The clinic in Bath referred me back to Bristol. No one will acknowledge having them. Since there was no ethical review and no apparent consent, there's no real way to...
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    United Kingdom: National Health Service (NHS) news

    Interesting. Has Mr Stevens informed Cochrane of this? Why rely on Cochrane about ME but not about homeopathy? Hm. Seems a bit inconsistent to me.
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    It is rather confusing. As I documented at length, this "pilot program" really should not be defined as service evaluation. The point seems to be that they believe it was done in the course of the provision of normal school clinical services, but since it's a pilot program it wouldn't seem to...
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    I was asked to publish it whole. Since I've done that, the request does not bind anyone else, as far as I'm concerned and I'm sure as far as they're concerned. I mean, no one else has agreed to that condition so the HRA certainly couldn't have any expectation that it applies to anything but the...
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    RoB 2: a revised tool for assessing risk of bias in randomised trials (2019) Sterne et al.

    This is certainly true, given that the PACE authors acknowledged a significant mistake in the Lancet correspondence about how they characterized the population of a database they used to developed their bogus "normal range." The point has never been corrected in The Lancet, and Dr Horton has...
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    I have pointed out to the HRA that I consider the vice chancellor to have already compromised his independence in this regard and should have no place in adjudicating this matter. That argument has not apparently persuaded anyone involved.
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    I filed FOIs for the letter. Bristol said they didn't have it and it was based at the clinic. The clinic told me they didn't have it and it must be at Bristol. Esther obviously has a copy, but that does not appear to fall into the category of Bristol having a copy. Esther claimed she sought...
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    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    exactly. It is the same approach taken by Archives of Disease in Childhood with the LP study. All the things were wrong, as I documented, but let's just regard them as technical violations rather than substantive.
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    Norway - CFS/ME Research Conference Nov. 25th-26th 2019

    Interesting that NIPH is involved. They're not pushing for anything on the revised bad exercise review or other BPS stuff? Is Atle Freitheim involved?
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    Trial By Error: Bristol’s Report Due Soon; Slides from My Oxford Talk

    I'm trying to keep a positive attitude, but it's hard.
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    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    Words like "ground-breaking," "world-first," etc are best not being tossed around like this--by scientists, press officers or the journalists who write about this stuff.
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    Australia: News from the Mason Foundation

    and would this be perceived as a "defeat" for the Lloyd and the rest of the GET/CBT ideological brigades there?
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    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    And it was only one-sided printing so there were more pieces, although it was worse for the environment.
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    Action for M.E. 2019 AGM and conference 15th October 2019

    Also...the MUS session was completely anti-MUS as a diagnostic category. I can see where the description of the session might have made it sound like somehow it was trying to explain why it might make sense to include ME in MUS but that of course was completely not the point. Joan Crawford, a...
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    Action for M.E. 2019 AGM and conference 15th October 2019

    This should not be taken as if they were trying to prove or say that it's better to have an ME specialist. That would be a misinterpretation. In the survey, they presumably asked respondents whether they got GET from from a self-styled specialist or a generalist. Given that the PACE folks always...
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    Action for M.E. 2019 AGM and conference 15th October 2019

    I said "ass," not "arse." I'm American!
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