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Yes, their effort to snow me and the NY Times and to secure an unwarranted correction certainly interested me in pursuing the case further, once I had the chance.

Right, I've thought of drawing up a PACE/CBT/GET "dictionary" of terms and phrases that mean things other than what they mean in standard English. As in accusing other of "tweaking" the recovery criteria when these supposed "tweakers" were just untweaking what the PACE team unacceptably tweaked...

About the PACE subgroups...I had an exchange of letters on NY Times site with the PACE authors on this issue in 2011, after I wrote a story on case definition that they didn't like. They wanted a correction, but my editor gave me a chance to respond to their disinformation. As Esther12 said...

Engaging with Sharpe is a waste of time, as I've discovered.

I don't disagree with that. I do think the major Australian groups are in regular discussions with the foundation.

Well the Mason Foundation also funds the biomedical folks at Griffith and Melbourne. So they fund research in a lot of different avenues.

yes, Alem's mum said in an e-mail that that's Alem's birthday. It would be nice to orchestrate some demonstration of support for him, for his family as well as him.

I'm glad to learn he has a personal commitment, through Simon. I didn't know that. I also appreciate that he apparently wrote to the PACE team a year ago asking for explanations of the methodological anomalies. That was the same time as I was writing open letters to the CMRC board about Esther...

My impression is that in this domain of research, the ethics committees, at least in the Bristol neck of the woods, appear to give approval for whatever the researchers ask to do--no matter what the proper approach would ordinarily be.

Twice the amount. My half-time salary/benefits are $73,000, more or less--$47,000 salary, the rest benefits. Full-time would basically be double. Benefits are often calculated about about 40% of at the salary.

yes, I've seen the health anxiety study. Before that, Daniels did a study with sample of one that found that, in that patient, modified CBT that included treatment for health anxiety produced desired effects. From this sample, she decided that the combination of CBT plus that extra help for...

Yes be careful. I don't want to be the cause of PEM in anyone!!

@Alvin Good for you! I hadn't noticed that, or as I said maybe I did and it triggered the association. Brain fog setting in after weeks Down Under?? I would have credited you!

@Alvin had you mentioned the Kinsley Gaffe? I hadn't seen that, or I don't remember at any rate. I've always loved that definition!

I have to agree with Esther12 about the meaning of that particular quote from Sharpe. Read in context, it seems to be as if the word "undeserving" should have been in quote marks, as if that's how the system views them--not he himself. There are plenty of things to say about Sharpe's beliefs and...

@anniekim I don't think that chapter from the book that was in The Guardian indicates that White has made that claim. It quotes the others but White just blabs on about the problem with separating psychological and biological--he's not actually quoted endorsing the CSS idea. The author herself...

It was a ludicrous excuse when Tom K. pointed it out to them in comments to the protocol. It's even more ludicrous now that we know definitively that the dropped it after the Dutch decided it wasn't "objective" after all because it didn't match the bogus subjective measures. It is hard to...

It wasn't a basement but it was a small dining room/living room space in a flat in an "intentional community" in Adelaide. Very low-key but professional.

@Trish--thanks for the explanation. I hadn't realized that about U.K. charities. I've contacted a few of last year's donors but haven't made that a priority. It's possible there might be another "matching" grant near the end. If I can exceed the goal like last year, that's also helpful. Berkeley...

Thanks for all the support! Last year was on a platform called Crowdrise, and I got asked about PayPal. I'm pretty sure that wasn't available. I agree that Berkeley's platform should include that possibility. In terms of e-mailing, I've e-mailed some people from last year's campaign. I don't see...