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  1. Kitty

    Burning muscles — is it myalgia / pain?

    And me. Thought I always have it in my quad (thigh) muscles, no matter what I do or don't do. As soon as the muscle is relaxed completely, the burning starts. If I tense them to stand up, 90% of the pain goes away until I relax them again. This means sleep without painkillers is essentially...
  2. Kitty

    The Madness of Medically Unexplained Symptoms, 2021, Jenny van der Palen

    Is this phrase itself not a good example of epistemic injustice? If it were used commonly in connection with, say, the fatigue and unwellness that some people experience long after completing their cancer treatment, I might be less suspicious. After all, those are symptoms that are medically...
  3. Kitty

    Adapt or die: how the pandemic made the shift from EBM to EBM+ more urgent, Greenhalgh et al, 2021

    I see your point entirely, but surely it's still an essential exercise if no-one actually knows. There are all sorts of environmental and cost reasons why it would be useful to know whether surgical masks really are significantly inferior in protective terms. It might even turn out that they...
  4. Kitty

    Adapt or die: how the pandemic made the shift from EBM to EBM+ more urgent, Greenhalgh et al, 2021

    Oh, that'll help no end. After all, accounting is so much easier and quicker when you do away with all that audit bother, because you can just make the numbers up.
  5. Kitty

    Sound sensitivity

    This is an important part of it. It's a very real phenomenon, and there can be a cumulative effect. Once our brains have registered that a particular type of sound is really hard on us, they put up defences against it, which depletes our energy even faster, which makes us even more sensitive...
  6. Kitty

    Open Australia: Griffith Uni: ION CHANNEL DYSFUNCTION IN ME/CFS

    It sounds like an interesting possibility to rule in or out—good luck to them. :thumbsup: It'd be great to get a reasonably clear result in an ME research project, even if it's a negative that advances our knowledge of where not to look.
  7. Kitty

    The itaconate shunt hypothesis

    Thank you, that's interesting. I suppose it partly comes down to money—it doesn't sound like a particularly cheap technique, and it might be more difficult than it looks at first sight to get the timing right. No, but perhaps if you could show something odd was going on, it might provide...
  8. Kitty

    Walking stick or rollator?

    It might be that it provides an additional source of feedback about your position in space, which is enough to help reduce the disorientation (which can feel like dizziness). I'm one of those people who falls over if they stand up and shut their eyes. Nothing to do with ME, I've just never...
  9. Kitty

    The itaconate shunt hypothesis

    Would this be likely to hold, no matter what type of metabolic diversion were in place? (I suspect life's not that simple, but it sounds so much like what we need that I thought I'd wonder about it aloud anyway...)
  10. Kitty

    No antibiotics worked, so this woman turned to a natural enemy of bacteria to save her husband's life, 2022, LaMotte

    I saw a BBC programme maybe 25 years ago, warning that almost 100 years of Georgia's research into bacteriophages was at risk due to power outages and unreliable storage equipment in the aftermath of the civil war. It prompted something of a rescue effort, and the research facility and at least...
  11. Kitty

    Walking stick or rollator?

    I've never been able to use a stick, but I use this rollator (minus the bag on the front) to get me from the changing room to the swimming pool. It's very manoeuvrable, and another advantage is that it turns almost instantly into an emergency chair if I go wobbly—you just put the brakes on, turn...
  12. Kitty

    World EBHC Day : October 20 2022

    Whether it's worth our bothering might depend on how they define the word "evidence". :whistle:
  13. Kitty

    News from Doctors with ME

    I'm sure I remember it from the feminism of the late 70s and into the 80s. The tradition it describes is still alive and kicking but some of the barriers are different, and perhaps that's why it seems so dated now. But yes, in this context a distraction.
  14. Kitty

    News from Doctors with ME

    It used to be common in the UK too, but seems to have begun as a fairly specific term referring to obstacles to women achieving senior leadership and board roles. It was expanded to include other minorities, and to cover other situations, but fell out of regular use maybe 20 years ago. It's...
  15. Kitty

    News from Doctors with ME

    Apologies for not making myself clear—I was talking about the overturning of Roe Vs Wade by the US Supreme Court. Against that backdrop, it would be somewhat challenging to attract much attention to the case of regulatory capture as it applies to ME.
  16. Kitty

    News from Doctors with ME

    Odd timing too, given that there's a high-profile and rather clearer example of regulatory capture in the news, and that is what people are actually interested in this weekend.
  17. Kitty

    Psychology needs to get tired of winning, 2022, Haeffel

    Even five years ago I wouldn't have believed how extraordinarily tiresome and difficult it is to sort out people who say they've won an election even when the evidence shows they haven't, or insist that a war isn't a war even as they're launching thousands of missiles. I expect it'll be equally...
  18. Kitty

    Orthostatic Challenge Causes Distinctive Symptomatic, Hemodynamic and Cognitive Responses in Long COVID and ME/CFS, 2022, Vernon et al

    And mine—in relation to the systolic pressure, at least. 107/89 would be the sort of range for a bad day. It's not like that all the time, though. I was recently asked to record BP, resting heart rate, and single-lead ECGs twice daily for two weeks, because as well as low pulse pressure, I...
  19. Kitty

    Yoga is effective in treating symptoms of Gulf War illness: A randomized clinical trial Hayley,Younger et al 2021

    It's probably helpful in the way that sucking sherbet lemons is helpful for ME. They taste nice and take your mind off it for a bit.
  20. Kitty

    What is the evidence base for non-infectious precipitating factors?

    Best answer I could give to the question is "none", I guess? We don't know what the trigger is in post-infectious cases, just that there's an association with some viruses. If it's also reasonable to say that asymptomatic infection is possible with those viruses, it makes it difficult to be...
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