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  1. Kitty

    Silent/soundproof living: tips and guides to achieve living in silence

    My MacBook is silent, as was the previous one. I don't think I've come across a computer that activated a fan in normal use since they had spinning disks. My last one eventually got to the stage where it would start the fan if I was doing something like watching a film and uploading tons of...
  2. Kitty

    Silent/soundproof living: tips and guides to achieve living in silence

    I don't typically have a problem with this kind of device, but at one point I did have a blender that made a noise I couldn't bear. Trouble was, it chopped large quantities of ginger more efficiently than anything else I'd had, and I couldn't afford to try several others. So I timed how long...
  3. Kitty

    Postexertional Malaise Syndrome?

    I'm not sure it's worth putting a lot of effort into renaming a condition that we still can't explain, because it's fairly likely that whatever is chosen will, in at least some respects, be as inaccurate as ME. Also, it feels as if there's something important in successfully "detoxifying" ME as...
  4. Kitty

    Leg tensing up only at night

    I do the same with marmalade, and it seems to work well. I've realised that in my case, high-salt food is often the cause of the pain. There's a possibility I have periodic paralysis, which would explain that link; since sugar always makes my muscles go floppy, it's feasible that it's relieving...
  5. Kitty

    Options for genetic testing

    I tend to agree. I don't think genetic diseases are often found accidentally through WGS; they're found, sometimes after many years, by the right expert recognising the symptoms, and then confirming it through genetic tests. Or at least trying to; in many cases not all the variants concerned are...
  6. Kitty

    Mitochondrial Mass of Naïve T Cells Is Associated with Aerobic Fitness and Energy Expenditure of Active and Inactive Adults, 2022, Alley et al

    I wouldn't describe less than 90 minutes per week of aerobic activity as particularly inactive. Okay, so members of that group clearly aren't long distance runners or cyclists, but you could be doing two or three sessions a week of interval training within that, which will keep you considerably...
  7. Kitty

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Good point. I find it useful when a link is accompanied by an indication of how long the article is, e.g. "Five-minute read". Sometimes I get drawn into things by picking a short article first, and then if it's decent quality or interesting, I'll look at longer ones.
  8. Kitty

    2022 Brian Hughes on the NICE Guideline and what it means for care of people with ME/CFS

    It was a great talk, I really enjoyed it too. The only thing I have doubts about is the idea of science being able to move on when the current generation of scientists retires. Not only did they train the subsequent generation, but the politics and funding of healthcare are actively pushing...
  9. Kitty

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    I get similar info from my swim app. It's important for me because if my technique, speed, and efficiency drop off, I know that it might be better to skip the next planned session because I'm on a downward slope (I'll get me coat :whistle:). So not only potentially important for research, but...
  10. Kitty

    Plasma metabolomics reveals disrupted response and recovery following maximal exercise in ME/CFS, Arnaud Germain, Maureen R. Hanson et al, 2022

    Given that the vast majority of the PEM experienced by patients is induced by daily living activities, this makes sense to me. I still think it would be worthwhile investing in the development of an app that could capture ME-specific data from commonly used devices such as sports watches. For...
  11. Kitty

    The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem (2016), Edwards, JC et al

    Yes, I've always found it interesting that when I have pain and fatigue and take painkillers, the fatigue fades out along with the pain. It's not due to a stimulant effect from opiate-type drugs—the same thing will happen with paracetamol taken for a headache, ibuprofen taken for an inflamed...
  12. Kitty

    The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem (2016), Edwards, JC et al

    I'd argue that this is just what we need. At the moment we have no way of reliably separating the people with TB from those with asthma or lung cancer, and as you say, we need to do this in order to make progress. Perceptive physicians could tease out some of the differences between the groups...
  13. Kitty

    Using PCs versus laptops when you're mostly in or on your bed

    My laptop has decent volume anyway, but I also have a pair of Bluetooth headphones so I can listen to music without annoying the neighbours. I guess it comes down to what you describe as loud. To give you an indication, I haven't been to a cinema since the early 1980s because that's when films...
  14. Kitty

    UK company Neuro ProActive

    Yes, me too. @Trish asked some really useful questions. One of the services offered that might be useful to patients is occupational therapy, but in the UK this is usually accessed by self-referral to local authorities. For people who're not working, the main purpose of an OT visit is to be...
  15. Kitty

    Using PCs versus laptops when you're mostly in or on your bed

    I agree, this is an important consideration for some folk—laptop screens are particularly expensive, and make up a biggish chunk of the cost. I just use one because it needs to be portable. I'm away from home on a wildlife trip at the moment, and I sometimes want to be able to view and process...
  16. Kitty

    Using PCs versus laptops when you're mostly in or on your bed

    Some you can, some aren't optimised yet (the new chip hasn't been out all that long). I certainly run Patient Access and MyGP on it—I don't use the main NHS app, so I'm not sure about that one. My mobile banking, credit card account, and credit union savings apps all run fine, as does the...
  17. Kitty

    Using PCs versus laptops when you're mostly in or on your bed

    I enjoy photography, so I have MacBook Pros—cost a fortune, but easily last nine or ten years. I got my first one secondhand in 1995, and I've bought my fourth this year. The 2012 one is still working okay and might well last another year or two, but I happened to have the money to replace it...
  18. Kitty

    Compression Garments

    Sorry, I missed this as I'm away at the moment. These are the ones I have: https://comfizz.com/collections/light-support/products/comfizz-lymphedema-boxers-knee-length-unisex They're starting to sell out of them, unfortunately! They've been on special offer for a long while, so I'm thinking...
  19. Kitty

    Best chopping tool/food prep gadget?

    Tesco often have them too. I sometimes buy their mixed packs of frozen sweet potato and butternut squash chunks to put in curries or stews.
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