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  1. Kitty

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Might it be fairer, then, to allow people who're unable to carry much to apply for delivery priority? It can be hard to make sense of it in a way that doesn't exclude people unnecessarily – lots of older people don't have PIP awards either, but they genuinely can't walk far or carry a week's...
  2. Kitty

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I use Tesco's delivery service, and they've said they intend to prioritise people on the government's list for delivery slots (so I've got no chance!). A friend who's both a Tesco member and definitely on the extremely vulnerable list hasn't yet heard from them, so I suspect they're still trying...
  3. Kitty

    UK: UC50 (Universal Credit) or PIP diary

    Yes, these are so much easier than the PIP form!
  4. Kitty

    UK: UC50 (Universal Credit) or PIP diary

    I've always typed mine too, as I can't write much by hand. I write 'See page X' in each box, then add a numbered sheet containing my answer to the question. As long as you put your NI number on each sheet and sign and date it, they're fine with this. The PIP form comes as a booklet, so each...
  5. Kitty

    UK: UC50 (Universal Credit) or PIP diary

    I agree – though emphasising that I could never predict accurately when I'd be fit to do some work without adverse consequences, or for how long I'd be able to keep it up, was probably the most important one for me. It's hard to argue that that's not a pretty significant barrier! In my case...
  6. Kitty

    UK: UC50 (Universal Credit) or PIP diary

    I did, although it was pretty brief. It related to my answers to the main questions, where I tried to give an accurate picture of my three broad types of day: Better – could get a shower, or visit a supermarket in my powered wheelchair, or do the laundry, or see a friend for a short time...
  7. Kitty

    If there was a study to follow ex-COVID-19 patients what would we want to see recorded?

    I'd like to see the makers of apps that are trying to track Covid-19 make good provision for recording non-typical new symptoms, and encourage people to keep on recording in detail until they are fully back to normal. That would pick up people who recover very slowly, and those who survive it...
  8. Kitty

    Six-foot rule to protect against coronavirus is questionable, MIT professor says (The Boston Globe)

    Yep. Simply didn't occur to the politicians that by telling people to do this, they're forcing the most vulnerable – those who're chronically ill and elderly, but don't have a support network – to increase hugely their contact with other people, because they rely on public transport to get to...
  9. Kitty

    Six-foot rule to protect against coronavirus is questionable, MIT professor says (The Boston Globe)

    Well, they're certainly being staggeringly thoughtless. It doesn't seem to have occurred to anyone that telling the nation to order their groceries online might affect the wheelchair users and other disabled people who depend on them. I used to visit supermarkets a handful of times a year –...
  10. Kitty

    All events about ME should now be virtual

    Absolutely agree! It's important that the researchers and clinicians meet face-to-face, though, as so much important networking goes on during coffee and meals breaks, and it would take a lot of time out of their schedules if they only met for a couple of hours a day. But if it's all live...
  11. Kitty

    UK: Removal of maximum council tax award (April 2020) for those on benefits

    They're pretty good, although it can be just as stressful when part of the system doesn't work quite as it should. My local councillors were brilliant when I had to stop work, sell my house (in which I didn't have much equity), and move into social housing, though. Our council tax is relatively...
  12. Kitty

    Hand Sanitizers

    Fingers crossed! It does have an antimicrobial in it, but it's one that doesn't cause allergies in many people. ETA: when I get down to the bottom of the bottle and the pump isn't working well any more, I just take it off. I add a bit of water to the cream, swish it around, and then just tip a...
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