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I am not sure whether those remarks are aimed at my post directly above them. There is unfortunately substantial literature on illness behaviour and the sick role which guided the thinking ot the BPS brigade in establishing their views of CFS. This paper in comparison appears quite benign.

That's the spirit. Keep up the optimism. There's a first time for everything.

There are highly puzzling aspects to this. He essentially presents himself, as a generalisation, as a splitter, as opposed to the lumpers, Wessely and Sharpe. Yet he was one of the chief architects of the Oxford criteria meeting-at least he is credited in the paper with having assisted with...

That is interesting. He places the blame for confusion on a meeting held 30 years before in that building. That would have been 1978. Time to revisit those papers.

It has to be said that he did come up with a "solution" in 1989, and pursued it for many years thereafter. Its just that it wasn't a solution, and none of us liked it.

Thanks @Michiel Tack and @Sarah. I tracked down an earlier use by SW in Cognitive Behaviour Management of PVFS by Simon Wessely, Sue Butler, Trudie Chalder and Anthony David in Post viral Fatigue Syndrome Eds Jenkins and Mowbray As regards practical advice the mainstay of treatment remains...

I read somewhere, I forget where, that CBT and GET were introduced to overcome the "therapeutic nihilism" of the time. I think it was Wessely. It seemed a neat turn of phrase, if a poor justification for inflicting the treatment on an ungrateful patient population. I mention this because I came...

How severely affected were these people with ME getting themselves from Norway to the Black Sea? It would not be surprising, if they were capable of undertaking such a journey, that they might be able to undertake other activity. It would not mean that they were improved or recovered.

It makes a welcome change to the "literature" on how patients seek and are granted legitimation through the "sickness role".

https://www.bbc.co.uk/news/health-48151355 Carol Monaghan is on the case.

He could be condemned to perpetual irrelevance by being made a peer- and being made to wander the corridors and dining facilities of the establishment.

And, of course, GOSH is the home of Pervasive Refusal Syndrome-though it is not clear whether the original cases described there by Lask were a genuine discrete category which was only extended elsewhere, further west, into severe ME.

It is just a shame that the civil service does not seem to have such a concern for those not in its employ.

The difficulty is that it is a fluctuating condition. I can quite imagine that someone who is generally at 30% might occasionally have periods within a day when a short walk may be possible. They might well pay for it, but it might nevertheless be worthwhile.

Jogging? Tried that in 1980. Didn't work then. No reason to expect it to work now. If only some of these doctors would listen to the shared experience of patients.

I think that the word I was looking for is "resembling". Having had a further night to think about this, it seems even more astonishing that NICE would reopen the old discussion about "functional". I thought that even Sharpe and Stone had accepted, at least for public consumption, that the term...

This is the Lask, Dillon paper which recommends not burdening patients with a diagnosis of ME. https://adc.bmj.com/content/archdischild/65/11/1198.full.pdf

The history of GOSH and ME seems quite complex. Dillon's reporting of the epidemic there seemed very sensible, but he did later collaborate on a paper with Lask in about 1990 which gave pause for thought. I shall see if I can find it.

And, of course, if they have not self-prescribed a form of GET, they can always be dismissed as idle b...…. who just will not make any effort to make themselves better.

I had forgotten how bad things were with NICE until I went back to read the original MEA letter. So they have made it clear, have they, that when they use the term "functional disorder" they mean "emotionally generated", rather than a disorder of function of unidentified origin. What can be...