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Bet they're regretting picking that name for their company, though.

No, we aren't. But one of the things I was saying, in my usual wordy style, is that the internet is part of the problem. It encourages people into echo chambers, where unhelpful and at time offensive attitudes are normalised, validated, and ingrained deeper. There were fewer opportunities to do...

Well, I suppose if I look on the most optimistic side of it... Reddit isn't real life, so there's a limit to what we can read into the conversations—people show off and say macho stuff online in a way that they probably wouldn't in a clinic. And even if junior doctors do let some of those...

I kind of understand that, if they're trying to encourage people to come forward to discuss unpublished work. It just never does seem to get published, though, even years later—unless there are obstacles I don't really understand (which is pretty likely, tbh!).

Is the book part of the Cormoran Strike series? I saw TV productions of a couple of those stories, and I quite enjoyed them—especially the first series, which was done really well. Until, that is, someone revealed they hadn't cast an actual disabled actor as Strike, but created the shots of the...

It will be interesting to see how it changes, now that everyone's doing self-testing and answering the survey question online or by phone. I've been part of the study since it first started, and I did my first self-test today. One of the issues with the face-to-face visits was that they rattled...

I've said it before, but this kind of data is critical if the studied population is on the mild-to-moderate spectrum. Many of us simply don't have the option to rest, as we live alone and need to eat, toilet, and keep ourselves, our clothes, and our living spaces at some level of cleanliness...

I agree, but also worry that it's not quite that simple. For instance, if my activity were being recorded over a few days recently, it might suggest I was probably on an even keel health-wise. But only because it wouldn't capture the quality of the activity. It couldn't know that half of what...

Yup! A tide with a five-metre range that makes the rivers run backwards twice a month, and can flood areas miles inland during the worst storms. Yes, it's true that it ought to be possible, specially in more experienced patients, to identify useful indicators of the state of their ME (or tidal...

This approach worries me a bit. One of the most important things I've learned in 46 years of illness is that I can't predict anything, and there's no point trying. I can give myself the best chance of "surviving" an unavoidable major activity by resting pre-emptively and making sure I schedule...

You really would think it might have occurred to someone to do this as soon as it became clear that it's a widespread phenomenon, wouldn't you.

I'm still waiting for one of these oiks to grasp that patients will always try to do more than they can, whether through frustration, cussedness, or sheer bloody necessity, and that any therapist who's actually interested in helping them needs to address it.

I used to work with someone who wouldn't go to the GP unless she was desperate. The first thing any healthcare professional would do, almost before saying Hello, was to ask her to step onto the scales. I was so worried about her at one point that I offered to go with her to an appointment, as...

The only anti-rheumatic I've used is sulfasalazine, which is at the milder end of the spectrum. It's used to treat psoriatic arthritis among other things. I think my ME is better since I started on it, and I've heard one other person say the same, but obviously we can't be sure. I don't have...

Oh, fabulous. "Here's your app, now sod off." Clearly they've never actually experienced chronic pain, or realised that many people with it are already very skilled at deploying management strategies.

Perhaps one of the crucial things in my case was that my employer was too small to have its own occupational therapist or specialist HR team. I used Access to Work funding to employ her, which meant that she was looking out for my welfare in the way that a company-employed OT might not have...

She doesn't say anything about the fact that one of the most important roles of an occupation therapist is making work change to accommodate the needs of the disabled person, does she. It all seems to be on the shoulders of the patient. My OT negotiated the provision of additional equipment and...

Fantastic news!

Sure, but that doesn't alter the fact that these major advances were made, astoundingly quickly.

There have been three new treatments for spinal muscle atrophy, all of which have the potential to be genuinely life changing for children born with the condition.