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  1. Kitty

    Long Covid - where is the psychosomatics ?

    Yup. The world: We might let you back in if you SHOW US THE EVIDENCE. Also the world: We know you haven't got any.
  2. Kitty

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    That's really interesting. Definitely the muscle, and not the thin layer of subcutaneous fat overlying some of them?
  3. Kitty

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    I thought it was odd until I realised that some of my muscle pain is probably caused by a different condition, and if I keep my sodium intake low, increase my potassium intake when needed, and don't get too cold, much of the "ripped" pain doesn't even start up. Painful as it is, I very much...
  4. Kitty

    UK: The NHS needs to ramp up treatment volumes if waiting lists are to start falling any time soon. 2022, IFS

    I don't know about outpatient services, but until they can get medically fit people out of hospital, nothing connected to inpatient treatment is likely to change. People are getting stuck for weeks and even months because they need some kind of support at home. There aren't nearly enough carers...
  5. Kitty

    The biology of coronavirus COVID-19 - including research and treatments

    What doesn't get said is that even if there were a bit of an uptick in people suffering from common respiratory viruses, for the most part it doesn't make much difference. These bugs circulate every year, large parts of the population can't realistically escape being exposed to at least some of...
  6. Kitty

    I emailed My Doctor 133 Times.. PhilosophyTube

    I do – thankfully – get better info than that when I need to talk to one of the GPs. I think the vaguest appointment slot I've had was one where they couldn't say whether it'd be mid to late morning or early afternoon, but did let me know that if I hadn't heard by 12:00 noon, I wouldn't get a...
  7. Kitty

    I emailed My Doctor 133 Times.. PhilosophyTube

    Ours too. There isn't a single email address provided anywhere on the practice site. The idiotic thing is that even if you write in capital letters when you send in data via the web platform that you're only providing information (e.g. blood pressure readings) that the GP requested during a...
  8. Kitty

    Basic questions on terms and methodology used in clinical trials

    I do sometimes wonder if part of the problem is that not enough people actually interrogate the data. If enough studies publish puffed up results that are more narrative than data-based, it could start to appear to purse-string holders (who may not have any expertise in the condition being...
  9. Kitty

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    I know, but she is well informed on ME, and will likely have good relationships with some colleagues in the Holyrood administration. If she isn't aware of it, I thought she might raise it with them (i.e. ask "WTAF?"). She might know about it, of course, and may already have rolled her eyes...
  10. Kitty

    Website 'neurosymptoms.org' founded by Jon Stone, funded by the Scottish Government promoting Recovery Norge

    Maybe someone on Twitter might volunteer to ask Carol Monaghan if she knows?? She represents the governing party (SNP).
  11. Kitty

    Options for genetic testing

    Apart from genetic haemochromatosis, I can't remember people saying they found useful, reliable information via direct-to-consumer tests. We don't know enough about ME genetics to pinpoint potential risk factors until DecodeME is completed, so a report won't uncover anything about that. I'd be...
  12. Kitty

    Any good science on problems taking Vitamin B12?

    I have B12 deficiency and self-inject adenosylcobalamin about every eight or 10 weeks, and also take a folate tablet a couple of times a week as insurance. I've been doing it for a good few years, and at checkups my levels now test within normal range. I noticed soon after starting that I...
  13. Kitty

    Tonsils, Appendixes, Gall Bladders and ME/CFS

    It would be hard to study the relationship with tonsillectomy in the UK, as for a couple of generations of people, it was a very common childhood procedure. The other two ought to be easier, but whether it would be productive is another question. If there did seem to be a link in some cases...
  14. Kitty

    Is long COVID the next global health crisis? 2022, Faghy et al.

    If there is such a change, though, it may eventually reveal something about what flips the switch to trigger post-viral illness. Not that that's much comfort to patients or to society at large, as unless serendipity steps in, unpicking it still looks like many years of work!
  15. Kitty

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Another nail in the journals' coffins, with a bit of luck. The whole system's bent, and probably does very little for the advancement of science. It's like the union closed shop; long out of date, and I say that as a trade unionist all my working life.
  16. Kitty

    Useful home measurement devices

    If you have Mac systems, you have to expend quite a lot of energy persuading the bloody things NOT to nag you about your screen time. It drives me nuts—see also Focus, which is where they turn off your alerts when you're working or sleeping. Which might be okay when they tell you about it, but...
  17. Kitty

    Useful home measurement devices

    The entertainment value wears off quite soon, to be honest, although they do provide a quick way to measure your heart rate if you haven't got a smart watch. My blood oxygen is consistently around this rate too, unless I've only just stopped doing something, in which case it's often in the...
  18. Kitty

    Daily Telegraph "What Long Covid might tell us about Chronic Fatigue Syndrome" article

    I have, although I only returned to around 90% of normal function. Without even knowing what it was, I needed to do a bit of pacing; I wouldn't plan anything very physically demanding for the day after a long hike, for example, although doing my desk-based job was fine. Whilst I was fit and...
  19. Kitty

    Closed UK: DecodeME updates, was recruitment thread.

    That was my first thought when I saw it in the paper this morning. I decided I was being absurdly paranoid ... it's good to know otherwise.
  20. Kitty

    Closed UK: DecodeME updates, was recruitment thread.

    It will be interesting to see if it's possible to identify groups who're still missing from the recruitment. Presumably there's a minority who know about the study but have concerns about submitting DNA, some of whom may still not be amenable even if all their questions were answered. Fair...
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