Search results

  1. JemPD

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Well I hope yourself, or someone else will let her know it exists, so that she at least might ask to see it. I don't imagine they will volunteer it?
  2. JemPD

    Question: Coronavirus & home sewn masks?

    Don't forget that unless you literally force the air to be sucked in through the fabric, which you can only do by creating an airtight seal all the way around - pretty impossible with a home made mask - then the more difficult you make it for the air to get through the fabric, the more will...
  3. JemPD

    Coronavirus - worldwide spread and control

    I had to go to a major hospital 2 wks ago, for an urgent but minor surgery, and I was staggered, just astonished, to see many many NHS staff milling about not observing any kind of distancing, only a tiny fraction of whom were wearing masks. I saw probably 200people that day & i'd estimate only...
  4. JemPD

    Resources for help getting food during quarantine and safe handling of food

    I asked this previously somewhere on S4 a while back & was told that the mouth has mucous membranes so food is a possible source of contamination. As I understand it the inner leaves of lettuce would be fine as you say... assuming you can remove the outer leaves without touching the inner ones...
  5. JemPD

    Coronavirus - worldwide spread and control

    interested to know what members think of this latest 'review of the evidence' https://www.bbc.co.uk/news/health-52770353 Knowing what I do about the reliability of review process & the whole GIGO thing, am wondering what the more science minded people here make of it?
  6. JemPD

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    lol really?!! :) wow I cant do it at all, not even at my best :confused: i just cannot make it happen, I could do it without issue pre ME, with some concentration.
  7. JemPD

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I'm concerned about this too. Like pre covid when so many people say "I had ME for 4mnths/1yr after 'X', but then they took more vitamins/did more exercise/pushed themselves/went cold water swimming/various woo practices.... and so clearly that is the cure for it. When the most likely thing is...
  8. JemPD

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    My memory recall isn't really the problem - if it's a number I've memorised previously then I can remember it unless I am very bad indeed - when I cant even remember my date of birth. It's the selection of digits & the actual inputing of them accurately, within a given time limit, that's the...
  9. JemPD

    UK: Physios for ME

    Woah! well done!
  10. JemPD

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    On the subject of cognitive testing. I recently started online banking.... I have terrible problems with it. I have my passwords written down (in code so that only I know what they are) but the security questions ask for digits from my password & security number out of order, and you have to put...
  11. JemPD

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    @Lucibee would you be ok with me copying & printing that out/showing it to people please?. A while back I was trying to explain the problems with the CFQ to a friend who is a scientist, but I struggled. Would appreciate being able to give them this - it's such a succinct explanation, written in...
  12. JemPD

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    rvallee makes a crucial point here. Please, please @PhysiosforME please let us look at it first. In my experience the tests usually delivered in hospitals/by Drs do not capture the problems I face. The most important thing is that it must not be the same test delivered repeatedly - one of the...
  13. JemPD

    "Soap"

    Thanks. I always understood the rubbing & rinsing under running water. I would just love to know what happens to the virus when immersed in strong-ish solution of washing up liquid - without rubbing or rinsing. But it sounds quite promising so that's good.
  14. JemPD

    "Soap"

    So does that mean that a strong - say 1:10 solution of washing up liquid may not kill coronavirus? My carer believes it will - because a doctor on tv said that any kind of soap eg washing up liquid would kill it. So for example, when she comes in, she goes straight to the kitchen tap & washes...
  15. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    My thanks to the sensible comments on Dr Garner's post re ME, I only managed to read a few. I thought yours particularly good @rvallee
  16. JemPD

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Dear Dr Garner, imagine that it never went away, imagine all those weird & wonderful 'advent calender' of symptoms that started with the virus & just kept on coming.... imagine they never went away. And decades later they are still there. You're still being 'beaten up with a cricket bat' -...
  17. JemPD

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    yes especially small 'unusual' things. Things patients report as being 'unusual' and quirky, things/sensations either not experienced before ME or very differently now. Things that Drs dismiss as superficial, hypochondriacal/body watching etc, but which may actually point to something useful...
  18. JemPD

    My mom is limited by a disability but still shows up in all ways that matter-Washington Post article

    what a lovely lovely article :) yes. Edited to remove sentence that could be viewed as possible 'conspiracy theory' - too ill to discuss/defend it
Back
Top Bottom