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I'm a bit confused about the asterisk next to CFS, IBS and MUS on p. 11 in the list of conditions covered. The asterisk is defined as the following: "IAPT services are only expected to treat these conditions if they have developed an IAPT-LTC pathway and have staff who have received training in...

This analysis was published earlier this year in Journal of Health Psychology: https://www.ncbi.nlm.nih.gov/pubmed/?term=Michael+scott+IAPT It found a 9% "recovery" rate from IAPT services rather than the close to 50% being claimed.

@Alvin I guess that's for the lawyers to figure out. There are probably different legal thresholds required in different countries for filing class action lawsuits, for example, to have a possibility of prevailing. In this case, on the part of the journals, it is clearly willful ignorance or worse.

@Stewart Thanks I tend to get UK formalities wrong.

I didn't know when I sent my note to her that she was making an appeal today...

I've been arguing in favor of "one of the biggest medical scandals of the millennium" rather than just the 21st century.

@alex3619 Where did you come up with the number 37 in terms of the issues in PACE? Is that an actual list? Would love to see it. I've never tried to count because so many of them are interlinked or embedded in each other. I think the use of the statistical method for normally distributed...

There are lots of reasons to be concerned about the SMILE study, starting with the LP itself. However, it turned out that you don't even need to criticize the LP itself in order to show that the study is bogus. Just pointing out these flaws should be enough in any normal circumstances for a full...

One of my favorites for "PACE Lexicon" is "pre-specified," which turns to to mean: "after all data collection but before we claim to have looked at any data, so even though it's an open label trial with subjective outcomes we can pretend to have no idea that we got bad results, and Cochrane...

Professor Sharpe avoids all direct questions with counter-questions or pseudo-responses. Classic strategy. Poor guy. He's seems seriously misguided or perhaps even deluded. Someone should stage an intervention before he causes himself even more rhetorical damage.

Curiouser and curiouser

In Australia, an exercise physiologist came to my talk in Perth and said she did "GET-with-pacing." When I looked at her published study, from late 90s, it was GET up to the point that patients experienced a setback. Then they were supposed to stay under that level and not push beyond anymore...

Yes, their effort to snow me and the NY Times and to secure an unwarranted correction certainly interested me in pursuing the case further, once I had the chance.

Right, I've thought of drawing up a PACE/CBT/GET "dictionary" of terms and phrases that mean things other than what they mean in standard English. As in accusing other of "tweaking" the recovery criteria when these supposed "tweakers" were just untweaking what the PACE team unacceptably tweaked...

About the PACE subgroups...I had an exchange of letters on NY Times site with the PACE authors on this issue in 2011, after I wrote a story on case definition that they didn't like. They wanted a correction, but my editor gave me a chance to respond to their disinformation. As Esther12 said...

Engaging with Sharpe is a waste of time, as I've discovered.

I don't disagree with that. I do think the major Australian groups are in regular discussions with the foundation.

Well the Mason Foundation also funds the biomedical folks at Griffith and Melbourne. So they fund research in a lot of different avenues.

yes, Alem's mum said in an e-mail that that's Alem's birthday. It would be nice to orchestrate some demonstration of support for him, for his family as well as him.

I'm glad to learn he has a personal commitment, through Simon. I didn't know that. I also appreciate that he apparently wrote to the PACE team a year ago asking for explanations of the methodological anomalies. That was the same time as I was writing open letters to the CMRC board about Esther...